whatEDSlookslike
@EDSlookslikewith awareness comes hope for the future... #thisiswhatEDSlookslike #EhlersDanlosSyndrome
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Their fight can be a difficult, tortuous road. #ItsOurTime #thisiswhatEDSlookslike youtube.com/watch?v=HkYr_W…
Immune Cells May Be Killing the Small Nerve Fibers in Fibromyalgia healthrising.org/blog/2022/04/2…
@ChrisCuomo we'd love to talk to you about the post-COVID #POTS research we're working on with the top experts. POTS impacts 1-3M Americans, but was largely ignored until COVID patients started developing it. Learn more at CurePOTS.org and vimeo.com/187404694
Is it possible the vents are causing lung injury because they are programmed for a different disease!! I think HIGHLY possible. Must be investigated. Zero to lose. Everything to gain!! #oxygennotpressure #TheTimeIsNow @emcrit @ThinkingCC vimeo.com/402908354
Fibromyalgia Neuroinflammation Finding Could Open New Treatment Options - Prohealth healthrising.org/blog/2018/10/1…
Spontaneous Diaphragmatic Rupture in Hypermobile Type Ehlers-Danlos Syndrome - Europe PMC Article - Europe PMC europepmc.org/articles/PMC55…
Dr. Nimish Mittal: Advancing the Clinical Practice of EDS in Canada - Current and Future Directions ilccommunity.org/ilc/content/10…
So-called Cirque du Soleil disease afflicts the extremely flexible ottawacitizen.com/news/local-new…
Molly had a couple of minor bumps while healing, but is doing well now, and lives every da... gofundme.com/mollysmiracle?…
This teen has Ehlers-Danlos Syndrome. Her story sums up what most people with invisible disabilities go through. @JustinTrudeau Can’t we do better than this yet? #thisiswhatEDSlookslike #FragileButUnbreakable ctvnews.ca/video?clipId=1…
Epstein-Barr virus protein can “switch on” risk genes for autoimmune diseases nih.gov/news-events/ne…
A New Type of Ehlers-Danlos Syndrome Discovered ehlers-danlos.com/a-new-type-of-…
BBC News - Disabled doctor left 'stranded' on London train bbc.com/news/uk-englan…
I Am a Zebra Hypermobility and Invisible Disabilities youtu.be/Q3V1ItCnfas via @YouTube
Instead of Filling Cavities, #Dentists May Soon #RegenerateTeeth scientificamerican.com/article/instea… via @sciam #Teeth
Stress May Not Only Affect The Brains Of The Stressed, Suggests New Study via @forbes forbes.com/sites/daviddis…
When A Sneeze Can Kill: Living Life With Deadly Rare Genetic Disorder, Vascular Ehlers-Danlos Syndrome | The Ehlers Danlos Society ehlers-danlos.com/mattsmith/#.Wp…
Two days post surgery. Molly is doing well and getting her nap on. #MollysMiracle #MollyB... gofundme.com/mollysmiracle?…
Ehlers-Danlos Society Receives Transformational Gift to Accelerate Genomic Research into Hypermobile EDS | The Ehlers Danlos Society ehlers-danlos.com/ehlers-danlos-…
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