In a major development, an Early Access Programme for a new treatment for DMD is now open in the UK.  Givinostat isn't yet approved in the UK, but the company is making it available free of charge until the regulators make a decision. Find out more: duchenneuk.org/givinostat-eap/

Why should you attend New Horizons 2025? 💙Meet other DMD families 🩺Hear from leading medical experts on managing the disease 🔬Get the latest updates on research and technology 👍Find helpful information and products from our exhibitors Book now: duchenneuk.org/new-horizons-c…

Take part in our #Duchenneber appeal! 📸Send us a festive photo 🎄Tell us your age and what you're most looking forward to this Christmas To send us your entry email fundraising@duchenneuk.org

Let's start the week on a high and say a huge well done and thank you to Emma Cutler for taking on four half marathons in October for Duchenne UK! Emma took on her '4 for a Cause' challenge for our Family and Friends Fund Ben vs Duchenne and raised £750!

Don’t miss out on the chance to buy a special Alex's Wish - Conquering Duchenne edition of Next boys' pyjamas! They are a great design, which Alex helped with, and 100% of the profits go directly to Alex’s Wish! Why not get them as a Christmas present? next.co.uk/style/su260856…

Are you up for cycling 300km from London to Paris in just 24hrs! Power up your pedals for the Duchenne Dash 2025 and cycle from London to Paris while you make friends, memories and, most importantly, a real difference in the fight to end DMD duchenneuk.org/dash

We want to say a huge thank you and well done to @Trad_UK1 who recently held a golf day that raised £25,000 for Duchenne UK! TRAD UK decided to support our Friends and Family Fund, Team Thomas, after their colleagues, Danielle and Liam Ackers's son Thomas was diagnosed with DMD

Here's what one parent who attended New Horizons had to say about the conference. 💬 Will you join us for #NewHorizons2025? Find out more and book your place: duchenneuk.org/new-horizons-c…

Take part in a hydrotherapy study. The study which explores the benefits of hydrotherapy, is open to males aged 6-25 years old, with a confirmed genetic diagnosis of Duchenne muscular dystrophy (ambulant or non-ambulant). dmdhub.org/trials/hydroth…

Check your inboxes! Our October newsletter has just landed and it's packed full of important updates and heartwarming news. Not signed up? Head to duchenneuk.org/get-support/ and scroll down to sign up for our monthly e-newsletter.

Have you booked your place for New Horizons 2025? 👀 Our brand-new conference returns in March 2025, bringing together leading experts in the field of DMD to provide the latest updates on research and managing the disease. duchenneuk.org/new-horizons-c…

Looking for participants for our focus grp research. Parent grps 23/10/24, 24/10/24. Young person grps 29/10/24. We need your help! @AddisonsUK @Pituitary_org @ChildGrowthUK @DuchenneUK @ActionDuchenne @BritSPED

What is New Horizons? It's our annual conference where you can get the latest news and updates on managing DMD. When? Friday 28 and Saturday 29 March 2025. Where? Holiday Inn London, Bloomsbury, Coram St, London WC1N 1HT. How do I get tickets? Go to duchenneuk.org/new-horizons-c…

We have launched our new In Case of Emergency app to ensure people with DMD receive appropriate treatment in emergency situations. The app enables users to maintain a profile of medical needs, emergency contacts, and guidance for healthcare providers. duchenneuk.org/new-app-to-pre…

Dr Janet Hoskin and Dr Claire Wood have conducted a study looking into sexual health and fertility in people with DMD. Because people with some disabilities need a lot of different medical support, topics like sex can sometimes be forgotten about. pathfindersalliance.org.uk/sex-and-fertil…

We're looking for siblings and caregivers of people with DMD to take part in an online interview to share their experiences. The interview will last no more than an hour and you can win a £30 Amazon voucher. Caregivers: nclpsych.eu.qualtrics.com/jfe/form/SV_eY… Siblings: nclpsych.eu.qualtrics.com/jfe/form/SV_bE…

Join us in London on FRiday 28 and Saturday29 March 2025 to hear the latest news about DMD research, treatments and technology, and up-to-date guidance on care and managing DMD. 📰👩‍🔬🧬 Spaces are limited, book now to avoid missing out. duchenneuk.org/new-horizons-c…

We need your help to develop standards and education resources for families about sick day/emergency adrenal insufficiency management. This 20-minute survey asks for your experience and information about spotting symptoms of adrenal crisis and emergency surveymonkey.com/r/adrenalinsuf…

We want to say a huge well done to everyone who ran the Royal Parks Half Marathon for Duchenne UK! 32 incredible runners ran 13 miles to raise money for Duchenne UK - thank you! #royalparkshalf #duchennearmy

Andrew Swarbrick and his family recently ran a marathon, raising £8,000 for Duchenne UK! Andrew took on the marathon in memory of his daughter who was a carer to someone with DMD. Thank you, Andrew!