The Dinosaur Trust
@DinosaurTrustWe fund research into a rare form of Pulmonary Artery Hypertension in order to save and improve the lives of children and adults.
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@PennMedPH
@rjbernardoMD
@SteveMathaiMD
@MaryamSanjani
@PulmonaryHIndia
@3CPRCouncil
@iPVDc
@fsdeman
@pulmvasculardoc
@OSitbon
@iuc453
@wm_oldham
‘This could be a real game-changer’: protein points to cure for life-limiting disease #thedinosaurtrust #allinforacure theguardian.com/science/2015/j…
Today we are celebrating #WorldCRISPRDay & the positive impact of innovative #genomics on #lifescience, human health, and our relationship with #DNA. #CRISPR #science
Pulmonary Hypertension day is celebrated every 5th of May. Today we celebrate all #PHighters around the world. Spread the love and support anyone living with Pulmonary Hypertension / PAH today #WorldPHDay2022 #PH #pulmonaryhypertension #LivingwithPH #PHawareness #PAH
Most children with congenital heart disease (CHD) don't look sick. You can't tell them apart from other kids but their scars are very real. Beneath their clothes are a constant reminder of their battle ❤️#CHDAwarenessWeek #ScarsAreCool #CHD #HeartAwarenessMonth #heartmonth RT
It's officially Rare Disease Awareness Month and the countdown to #RareDiseaseDay 2022!⏰ Watch now to learn more about what our global movement is all about!
28 February 2022 is Rare Disease Day. But what does that really mean? #RareDiseaseDay is the global movement dedicated to raising awareness and generating change for the 300 million people living with a rare disease around the world. Join us this year: cutt.ly/eOlehAY
I'd like to show you a pandemic success story in my clinical area- pulmonary hypertension Despite the pandemic, the national audit shows the remarkable resilience of our UK specialist system 🧵 @HelpMyBreathing @aarthompson1 @acchurch1 @wginsing @PHA_UK digital.nhs.uk/data-and-infor…
PH Week: 1-7 Nov Try this: Put a straw in yr mouth and hold yr nose. Walk across room - bit difficult? Try doing tasks - still hard? Walk up stairs - almost impossible. Now try doing it 24 hours a day, 365 days a year. #PHWeek21 #PHA_UK #hearourvoices Please share - thank you
Not all disabilities are visible! Listen to @maritess_mt talk about the challenges of having a hidden illness in her new podcast episode 👇
Invisibility of PH - S1: Episode 6 is now available to download & listen. Pls join in the show by emailing phightertesspodcast@gmail.com Available on many platforms, so please subscribe! 🎙️💜phightertesspodcast.buzzsprout.com #podcast #pulmonaryhypertension #phighter @PHA_UK
Here in the UK, it's #PHWeek21! Let the raising awareness across our country begin... I hope this week someone learns something new about this rare, serious and progressive heart and lung condition! 💜#HearOurVoices #phighter #pulmonaryhypertension #NoCureAlwaysHope @PHA_UK
💜 ℙℍ 𝕎𝕖𝕖𝕜 - 𝔻𝕒𝕪 𝟚 💜 Pulmonary Hypertension (PH for short) is a rare and serious condition that causes high blood pressure in the blood vessels connecting the heart and lungs (the pulmonary arteries). #PHWeek21 #HearOurVoices #pulmonaryhypertension #phighter
It’s #InvisibleDisabilitiesWeek. So many people are still so unaware & ignorant of invisible disabilities. I realise those people don’t matter to me, they don’t know me, I know the truth & I will not let them or PH stop me from living my life to the full. #phighter #bekind
Today we celebrating #WorldCRISPRDay & the positive impact of innovative #genomics on #lifescience, human health, and our relationship with #DNA. #CRISPR #science #technology
Don’t miss the #WorldCRISPRDay keynote “Imagine CRISPR Cures” presented by @UrnovFyodor, Ph.D., from the @igisci and @UCBerkeley! Register for this free virtual event today: worldcrisprday.com/s/202140cb69af…
Chole is a superb talent and wonderful ambassador for #raisingawareness of #pulmonaryhypertension. #phighter #ph #chronicillness #invisibleillness #charity #phraisingawarness #raredisease #chroniccommunity #pulmonaryhypertentensionadvocate #nocurealwayshope #superbravekids
“Unbroken” is now available everywhere 🎵 Happy Sunday! And Monday! And Tuesday! 🌲#originalsong #music
It was such a pleasure to chat with Prof. @mark_toshner from the University of Cambridge. #worldlungday #podcast #pulmonaryhypertension #clinicaltrials #phighter #pulmonaryhypertension #ph #chronicillness #charity #phraisingawarness #raredisease #nocurealwayshope
Listen to the latest episode in our #BreathingScience podcast series with Jamie Strachan from @DinosaurTrust and Prof. @mark_toshner from the University of Cambridge on 'PH Research - where are we now?' tinyurl.com/4mm8dj3x #Podcast #PulmonaryHypertension #ClinicalTrials
Listen to the latest episode in our #BreathingScience podcast series with Jamie Strachan from @DinosaurTrust and Prof. @mark_toshner from the University of Cambridge on 'PH Research - where are we now?' tinyurl.com/4mm8dj3x #Podcast #PulmonaryHypertension #ClinicalTrials
#LoveYourLungsweek #BreathEasyWeek #Breath #lostart #breath #breathwork #breatheeasy #somabreath #breathingtechniques #pranayama #jamesnester #TheNewScienceofaLostArt #phighter #pulmonaryhypertension #NoCureAlwaysHope #pah #ph #pulmonaryhypertentensionadvocate
Join the PVRI and @escardio this Wednesday at 3PM BST for a Joint Symposium on the pulmonary circulation in the heart failure syndrome. Register here: pvrinstitute.org/en/professiona… #HeartFailure #PulmonaryCirculation #PulmonaryHypertension
Listen to the latest episode in our #BreathingScience podcast series with Ghazwan Butrous on developing Viagra for pulmonary hypertension. #Viagra #Podcast #PulmonaryHypertension @gbutrous youtube.com/watch?v=Crqo2N…
It is time to celebrate the small charities that make a big impact and are vital to supporting communities. #SmallCharityWeek @SCWeek2021 #NeverMoreNeeded #SmallbutMighty #aworldwithoutPAH #thedinosaurtrust
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Who to follow
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Pulmonary Hypertension at Penn
@PennMedPH -
Roberto J. Bernardo, MD, MS, ATSF 🇵🇪🇺🇸
@rjbernardoMD -
Stephen Mathai
@SteveMathaiMD -
Maryam S. Sanjani, PhD 🫁🫀
@MaryamSanjani -
Pulmonary Hypertension India
@PulmonaryHIndia -
3CPR Council
@3CPRCouncil -
iPVD consortium
@iPVDc -
Frances Handokodeman
@fsdeman -
Laura Price
@pulmvasculardoc -
Olivier Sitbon
@OSitbon -
Charly Lai
@iuc453 -
Will Oldham
@wm_oldham
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