DinosaurTrust's profile picture. We fund research into a rare form of Pulmonary Artery Hypertension in order to save and improve the lives of children and adults.

The Dinosaur Trust

@DinosaurTrust

We fund research into a rare form of Pulmonary Artery Hypertension in order to save and improve the lives of children and adults.

Joined March 2020
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Today we are celebrating #WorldCRISPRDay & the positive impact of innovative #genomics on #lifescience, human health, and our relationship with #DNA. #CRISPR #science


Pulmonary Hypertension day is celebrated every 5th of May. Today we celebrate all #PHighters around the world. Spread the love and support anyone living with Pulmonary Hypertension / PAH today #WorldPHDay2022 #PH #pulmonaryhypertension #LivingwithPH #PHawareness #PAH


The Dinosaur Trust Reposted

Most children with congenital heart disease (CHD) don't look sick. You can't tell them apart from other kids but their scars are very real. Beneath their clothes are a constant reminder of their battle ❤️#CHDAwarenessWeek #ScarsAreCool #CHD #HeartAwarenessMonth #heartmonth RT

BromptonSupport's tweet image. Most children with congenital heart disease (CHD) don't look sick. You can't tell them apart from other kids but their scars are very real. Beneath their clothes are a constant reminder of their battle ❤️#CHDAwarenessWeek #ScarsAreCool #CHD #HeartAwarenessMonth #heartmonth RT

The Dinosaur Trust Reposted

It's officially Rare Disease Awareness Month and the countdown to #RareDiseaseDay 2022!⏰ Watch now to learn more about what our global movement is all about!

28 February 2022 is Rare Disease Day. But what does that really mean? #RareDiseaseDay is the global movement dedicated to raising awareness and generating change for the 300 million people living with a rare disease around the world. Join us this year: cutt.ly/eOlehAY



The Dinosaur Trust Reposted

I'd like to show you a pandemic success story in my clinical area- pulmonary hypertension Despite the pandemic, the national audit shows the remarkable resilience of our UK specialist system 🧵 @HelpMyBreathing @aarthompson1 @acchurch1 @wginsing @PHA_UK digital.nhs.uk/data-and-infor…


The Dinosaur Trust Reposted

PH Week: 1-7 Nov Try this: Put a straw in yr mouth and hold yr nose. Walk across room - bit difficult? Try doing tasks - still hard? Walk up stairs - almost impossible. Now try doing it 24 hours a day, 365 days a year. #PHWeek21 #PHA_UK #hearourvoices Please share - thank you

jaynevenables's tweet image. PH Week: 1-7 Nov
Try this: Put a straw in yr mouth and hold yr nose.  Walk across room - bit difficult? Try doing tasks - still hard? Walk up stairs - almost impossible.  
Now try doing it 24 hours a day, 365 days a year.
#PHWeek21 #PHA_UK #hearourvoices

Please share - thank you

The Dinosaur Trust Reposted

Not all disabilities are visible! Listen to @maritess_mt talk about the challenges of having a hidden illness in her new podcast episode 👇

Invisibility of PH - S1: Episode 6 is now available to download & listen. Pls join in the show by emailing phightertesspodcast@gmail.com Available on many platforms, so please subscribe! 🎙️💜phightertesspodcast.buzzsprout.com #podcast #pulmonaryhypertension #phighter @PHA_UK

maritess_mt's tweet image. Invisibility of PH - S1: Episode 6 is now available to download & listen. Pls join in the show by emailing phightertesspodcast@gmail.com. Available on many platforms, so please subscribe! 🎙️💜phightertesspodcast.buzzsprout.com #podcast #pulmonaryhypertension #phighter 
@PHA_UK


The Dinosaur Trust Reposted

Here in the UK, it's #PHWeek21! Let the raising awareness across our country begin... I hope this week someone learns something new about this rare, serious and progressive heart and lung condition! 💜#HearOurVoices #phighter #pulmonaryhypertension #NoCureAlwaysHope @PHA_UK

maritess_mt's tweet image. Here in the UK, it's #PHWeek21! Let the raising awareness across our country begin... I hope this week someone learns something new about this rare, serious and progressive heart and lung condition! 💜#HearOurVoices #phighter #pulmonaryhypertension #NoCureAlwaysHope @PHA_UK
maritess_mt's tweet image. Here in the UK, it's #PHWeek21! Let the raising awareness across our country begin... I hope this week someone learns something new about this rare, serious and progressive heart and lung condition! 💜#HearOurVoices #phighter #pulmonaryhypertension #NoCureAlwaysHope @PHA_UK

The Dinosaur Trust Reposted

💜 ℙℍ 𝕎𝕖𝕖𝕜 - 𝔻𝕒𝕪 𝟚 💜 Pulmonary Hypertension (PH for short) is a rare and serious condition that causes high blood pressure in the blood vessels connecting the heart and lungs (the pulmonary arteries). #PHWeek21 #HearOurVoices #pulmonaryhypertension #phighter

maritess_mt's tweet image. 💜 ℙℍ 𝕎𝕖𝕖𝕜 - 𝔻𝕒𝕪 𝟚 💜

Pulmonary Hypertension (PH for short) is a rare and serious condition that causes high blood pressure in the blood vessels connecting the heart and lungs (the pulmonary arteries). #PHWeek21 #HearOurVoices #pulmonaryhypertension #phighter

The Dinosaur Trust Reposted

It’s #InvisibleDisabilitiesWeek. So many people are still so unaware & ignorant of invisible disabilities. I realise those people don’t matter to me, they don’t know me, I know the truth & I will not let them or PH stop me from living my life to the full. #phighter #bekind

maritess_mt's tweet image. It’s #InvisibleDisabilitiesWeek. So many people are still so unaware & ignorant of invisible disabilities. I realise those people don’t matter to me, they don’t know me, I know the truth & I will not let them or PH stop me from living my life to the full. #phighter #bekind

Today we celebrating #WorldCRISPRDay & the positive impact of innovative #genomics on #lifescience, human health, and our relationship with #DNA. #CRISPR #science #technology


The Dinosaur Trust Reposted

Don’t miss the #WorldCRISPRDay keynote “Imagine CRISPR Cures” presented by @UrnovFyodor, Ph.D., from the @igisci and @UCBerkeley! Register for this free virtual event today: worldcrisprday.com/s/202140cb69af…

Synthego's tweet image. Don’t miss the #WorldCRISPRDay keynote “Imagine CRISPR Cures” presented by @UrnovFyodor, Ph.D., from the @igisci and @UCBerkeley! 

Register for this free virtual event today: worldcrisprday.com/s/202140cb69af…

Listen to the latest episode in our #BreathingScience podcast series with Jamie Strachan from @DinosaurTrust and Prof. @mark_toshner from the University of Cambridge on 'PH Research - where are we now?' tinyurl.com/4mm8dj3x #Podcast #PulmonaryHypertension #ClinicalTrials

PVRI's tweet image. Listen to the latest episode in our #BreathingScience podcast series with Jamie Strachan from @DinosaurTrust and Prof. @mark_toshner from the University of Cambridge on 'PH Research - where are we now?' tinyurl.com/4mm8dj3x
#Podcast #PulmonaryHypertension #ClinicalTrials


The Dinosaur Trust Reposted

Listen to the latest episode in our #BreathingScience podcast series with Jamie Strachan from @DinosaurTrust and Prof. @mark_toshner from the University of Cambridge on 'PH Research - where are we now?' tinyurl.com/4mm8dj3x #Podcast #PulmonaryHypertension #ClinicalTrials

PVRI's tweet image. Listen to the latest episode in our #BreathingScience podcast series with Jamie Strachan from @DinosaurTrust and Prof. @mark_toshner from the University of Cambridge on 'PH Research - where are we now?' tinyurl.com/4mm8dj3x
#Podcast #PulmonaryHypertension #ClinicalTrials

The Dinosaur Trust Reposted

Join the PVRI and @escardio this Wednesday at 3PM BST for a Joint Symposium on the pulmonary circulation in the heart failure syndrome. Register here: pvrinstitute.org/en/professiona… #HeartFailure #PulmonaryCirculation #PulmonaryHypertension

PVRI's tweet image. Join the PVRI and @escardio this Wednesday at 3PM BST for a Joint Symposium on the pulmonary circulation in the heart failure syndrome. Register here: pvrinstitute.org/en/professiona…
#HeartFailure #PulmonaryCirculation #PulmonaryHypertension

The Dinosaur Trust Reposted

Listen to the latest episode in our #BreathingScience podcast series with Ghazwan Butrous on developing Viagra for pulmonary hypertension. #Viagra #Podcast #PulmonaryHypertension @gbutrous youtube.com/watch?v=Crqo2N…

PVRI's tweet image. Listen to the latest episode in our #BreathingScience podcast series with Ghazwan Butrous on developing Viagra for pulmonary hypertension. 
#Viagra #Podcast #PulmonaryHypertension @gbutrous youtube.com/watch?v=Crqo2N…

It is time to celebrate the small charities that make a big impact and are vital to supporting communities. #SmallCharityWeek @SCWeek2021 #NeverMoreNeeded #SmallbutMighty #aworldwithoutPAH #thedinosaurtrust


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