Cure MND
@CureMNDSix people a day die with Motor Neurone Disease (#MND) / UK. @MHRAgovuk & @NICEcomms should conduct an Accelerated Review for existing treatments.
Similar User
@everything_als
@ALSMNDAlliance
@als_now
@bsw5020
@AnswerALS
@BrainstormCell
@MinoShah
@MaryKayTurner1
@FGVoneforty
@MNDoddie5
@SteveGleason
@mndassoc
@Markbedwell11
@ClinGenResource
@friggindoper
JustGiving.com/Matt-jones88 Can you all please read this story, share and donate, thank you. @mndassoc @MNDManchester @mndeducation @JustGiving @mndresearch @MNDPatients @MNDA_WestYorks @mndcampaigns @ALSMNDAlliance @mndVIPteam @MNDScotland @CureMND @mndaeastsurrey
Remembering my friend Elsie today. Elsie died while fighting so hard for a chance to access #Nurown to see if she would also respond. The broken system failed her despite a 100% fatal #ALS diagnosis. They left her to die. #BloodOnYourHands #PeterMarks @FDACBER @DrWoodcockFDA
pALS on NUROWN-WHEELCHAIR TO STANDING pALS DENIED ACCESS TO NUROWN-STANDING TO WHEELCHAIR SAME WINDOW OF TIME
It supports a rapidly growing expanded access program. Its leaders are committed to URGENTLY finding treatments & cures. ALL DONATIONS go to research/treatments, NOT salaries. PLEASE encourage fundraisers, friends & family to donate.🙏🙏 #HealeyHope giving.massgeneral.org/donate/healey-…
I still hear other orgs brought up. This can't be stressed enough!!! The CLEAR LEADER for #ALS treatment access/research is the @MGHNeurology Healey Center. NO OTHER ORG COMES CLOSE. Uniting behind them advances ALS at all trial sites across the country. #PlatformTrial
#GivingTuesday since it’s giving tuesday, if you could spare anything, during the current climate to help us raise funds to allow David to return to mexico for stem cell therapy 🤞🏼🙏🏼 #balmerbattlesmnd gofundme.com/f/bc469k-david… @CalvinHarris @LewisCapaldi @kevinbridges86
Approaching ✨50,000✨ If everyone who's signed our petition with @mndassoc and @MNDoddie5 got one other person to sign, we'd be a step closer to securing a vital debate in the UK Parliament. #United2EndMND Let's make it happen! 👇
100,000 signatures 👏👊 Thank you to everyone who has signed our petition with @mndassoc and @MNDScotland - this means the petition will now be considered for a debate in parliament. It's not too late to add your name, every signature is important: petition.parliament.uk/petitions/5645…
Check out the MND-SMART newsletter for the latest updates from our clinical trial.
Interested in what's been happening on our #MND clinical trial recently? Have a read of our April e-newsletter: bit.ly/2QHX9zW If you'd like to receive future newsletters by email. Sign up via our website.
#Nurown Lucha mundial contra la ELA - No podemos esperar @US_FDA @EMA_News - Sign the Petition! chng.it/VDbYxxS5 via @Change
Bronstein, Gewirtz & Grossman, LLC Notifies Investors of Brainstorm Cell Therapeutics Inc. (BCLI) Investigation uk.finance.yahoo.com/news/bronstein… via @Yahoo
Thank you for your message. There are no changes to the investigational medicinal compounds being tested in @mndsmart (trazodone & memantine). Best wishes.
@suvankarpal @EuansCentre @MeritCudkowicz Dear Dr Pal Thank you for the initiative. Is the first drug indicated below Namenda / Namzaric (Memantine & Donepezil)? What is the second drug on the platform trial? The first drug is already used to improve the (1/3)
I cannot wait for the day that enough people are invested in the fight against ALS that a tweet saying “end ALS” can go viral alongside tweets about politics. On that day, this guy with ALS will get out of his wheelchair and dance like no one is watching.
Context! Let's make sure we listen to Medical Doctors @BrainstormCell @AlsOklahoma @alsassociation @ALSMNDAlliance @CureMND #als #endals @alstexas @ALSTDI @ALSA_EC @alssac @alssac @ALSA_RockyMtn @alsnewstoday @ALSANorthernOH @ALSAlabama @ALSAIOWA @ALSAMA @ALSAUNY @ALSA_Nevada
#newpetition petition.parliament.uk/petitions/5633… Have a look, sign, share and retweet please folks. @Rob7Burrow @siferry8 @aconnolly91 @siobhancon1 @MNDoddie5 @DoddieWeir5 @DarbyRimmerMND @CureMND @jucojames @MarcFairbairn90 @MartinJ_MND @balmerbattlesm1 @StephenMoran7
#alstreatmentsnow Light a candle for #ALS #MND, Amyotrophic Lateral Sclerosis, an agonizing and deadly disease. We need treatments now !!! #NUROWN #AMX0035 @US_FDA @EMA_News Join this challenge and nominate other people @Emma_MacLennan @lynseymerritt @CureMND @emmccormick2005
Still wrapping my head around the fact that Kev Sinfield is a couple of quid away from raising £2.5 million for his friend @Rob7Burrow There are plenty of examples of poor leadership around but Kev is strong, loyal and selfless. Once a captain, always a captain. What a fella👏🏻
I am trying to fundraise for my brother who has ALS and needs money to return for potential lifesaving treatment, struggling on the fundraising front due to COVID. This would help massively! @JeffreeStar 🤞🏼
Who needs help today?? I’m going to pick 3 random people who retweet this and send them $3,000 ♥️ Love you guys
United States Trends
- 1. Cowboys 33,5 B posts
- 2. #WWERaw 28,2 B posts
- 3. Pulisic 3.272 posts
- 4. #AskShadow 4.567 posts
- 5. Mixon 6.353 posts
- 6. Tunsil N/A
- 7. #USMNT 1.109 posts
- 8. #HOUvsDAL 3.451 posts
- 9. Skenes 12,2 B posts
- 10. Merrill 6.055 posts
- 11. Sean Duffy 20 B posts
- 12. Luis Gil 6.394 posts
- 13. Rhea 13,8 B posts
- 14. #MNFxESPN N/A
- 15. Nico Collins 3.109 posts
- 16. Cowser 1.737 posts
- 17. Mazi Smith N/A
- 18. GOTY 52,4 B posts
- 19. Road Rules 1.371 posts
- 20. Katie Hobbs 18 B posts
Who to follow
-
EverythingALS
@everything_als -
ALS/MND Alliance
@ALSMNDAlliance -
No More Excuses ALS Watchdogs!
@als_now -
Brian Wallach
@bsw5020 -
AnswerALS
@AnswerALS -
BrainStorm
@BrainstormCell -
Shah Minokadeh, M.D.
@MinoShah -
Mary Kay Turner
@MaryKayTurner1 -
Fernando G Vieira
@FGVoneforty -
My Name'5 Doddie Foundation
@MNDoddie5 -
Steve Gleason - "Live Impossible"
@SteveGleason -
MND Association
@mndassoc -
Mark bedwell AlS
@Markbedwell11 -
ClinGen
@ClinGenResource -
chief keef haring
@friggindoper
Something went wrong.
Something went wrong.