@ChatNoirAcetam Profile picture

ChatNoirAcetam

@ChatNoirAcetam

Dr Vet Med - Internal med/Ultrasound. 🐈. "Knowledge makes humble, ignorance makes proud". MCAS, Small Fiber Polyneuropathy, Dysautonomia, ME, Neuro-Sjögren

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Pinned

"Every clinician has great confidence in their own clinical judgement. And therein lies the problem. Objective assessment is always required to combat the conceit of personal wisdom." [Pr Brian Hughes]

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👌

Fluctuations in the price of butter caused premature aging in childrens brains, especially girls, say experts

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ChatNoirAcetam Reposted

Huge #EDS news! What does this mean? 1) #hEDS, the only common EDS type at 1 in 500 and the only type without a biomarker until now, finally has a biomarker 2) #HSD was likely #hEDS all along as many suspected, and the 2017 reclassification was wrong 🧵 onlinelibrary.wiley.com/doi/10.1002/aj…


ChatNoirAcetam Reposted

Systemic reactive #angioendotheliomatosis mimicking hypertrophic cardiomyopathy in a domestic shorthair cat buff.ly/4e645Nb


ChatNoirAcetam Reposted

My daughter Isla suffered so much, ill with ME from age 6, told to push through the pain to get better, years of deterioration and disbelief. Involvement of Social Services because of concerns of Fabricated Illness and later her MCAS symptoms put down to anxiety. She died in May

CONTENT WARNING Isla was only 18 years old when she died in May. She had been ill with ME since 6, later with POTS & MCAS. Her family say she faced disbelief & neglect from many professionals. Things have to change for ME patients #VerySevereME #POTS #MCAS Andrew Gwynne MP

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ChatNoirAcetam Reposted

📢 @ImmunologyAAI announces support for the "Long COVID Research Moonshot Act" legislation introduced by @SenSanders 👏🏽👏🏽👏🏽 #longCOVID #PAIS #MECFS

AAI has written to @SenSanders to offer support for his recently introduced legislation, the "Long COVID Research Moonshot Act" which would, among other things, provide NIH with $1 billion/year for 10 years to support Long COVID research. Read it here: bit.ly/4gbD38x

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People with #MCAD #MCAS #SAMA #mastocytosis @MastCellAction @MCDiseasesUnite @assomast : those of u having anaphylaxis to VOC/perfume, what mask (brand/serie) really keeps u safe, during a hospital stay for instance ? Thanks for any advice 🙏


ChatNoirAcetam Reposted

feline oral squamous cell #carcinoma and Felis catus #papillomavirus: is it time to walk the path of human oncology? frontiersin.org/articles/10.33…%%


ChatNoirAcetam Reposted

Veterinary #radiologic error rate as determined by necropsy. From 2020 to 2021, nearly half of all clinically significant abnormalities noted at necropsy went undetected by antemortem imaging buff.ly/3PhETtj


ChatNoirAcetam Reposted

Congratulations to our friends at STAT Health, who launched their new ear device today that can track heart rate, blood flow to the head, body position & more! We are super excited to see tech companies developing tools for the #dysautonomia community! cnbc.com/2023/06/13/sta…


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‼️ Le protéome plasmatique des patients #LongCovid indique une maladie vasculo-proliférative médiée par le facteur induit par l'hypoxie (HIF) avec des effets profonds sur la fonction cérébrale et cardiaque #CovidLong🧵👇



ChatNoirAcetam Reposted

Un souci tout particulier dans l'accompagnement des patients avec un covid long, dont la majorité sont... des femmes...

🎧#UnTempsRadio sur @franceculture dans @ScienceCQFD avec @NatachaTriou Excellente émission sur comment les préjugés liés au genre influencent les pratiques médicales. ♀️♂️ radiofrance.fr/franceculture/…



ChatNoirAcetam Reposted

A 2020 study revealed that protein “executioners” of cell death found in vertebrates also exist in corals. This #WorldOceanDay, learn about how these proteins may play a role in cell death caused by bacterial infection tied to #coral bleaching: scim.ag/2VI

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#longcovid #covidlong #pwLC #pwME #MECFS Post-Inf Sd patients/clinicians : since dizziness/vertigo seem to b frequent symptoms, do some present with PPPD as part of #PACS/#ME? If yes, does it fluctuate like other symptoms, or is evolution linear? Thx. ncbi.nlm.nih.gov/books/NBK57819…


ChatNoirAcetam Reposted

serum proteome profiles in cats with chronic #enteropathies. Damage to the gut lining released marker proteins of chronic inflammation that were detectable in serum samples of cats. buff.ly/3CjbBmk


ChatNoirAcetam Reposted

Cyclical 10‐day dosing of melphalan for canine multiple #myeloma. This cyclical 10-day protocol was better-tolerated with fewer adverse events than with other reported chemotherapy protocols, but response rate was also lower buff.ly/3MW1Or8


ChatNoirAcetam Reposted

Targeted therapies 4 NeuroSjogrens won't b found if research uses ESSDAI scale bc its terribly insensitive to Sjogrens widespread neuro damage in most patients. Adopt the NISSDAI (neuro ESSDAI) but add in small fiber, autonomics & ganglionopathies & use 2 track-> "+" studies.

Targeted therapies in Sjogren’s syndrome: are we close? There is a clear unmet need for new and effective therapies in primary Sjogren’s Syndrome (pSS) patients, as there is no current licensed therapies. bit.ly/3MRUsFa

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ChatNoirAcetam Reposted

ACR 2021 Compare the 5 total Sjogren’s sessions, including workgroups) to: RA – more than 400 presentations & sessions SLE- more than 300 Spondyloarthropathies- about 300 Systemic sclerosis -137 Gout- 86 Dermatomyositis/ myositis -116


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