CRPS UK
@CRPSUKCRPS UK is a registered charity run for and by people with Complex Regional Pain Syndrome. Charity number:1165597 admin@crps-uk RT does not = endorsement
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@PainResForum
@PainConcern
@BritishPainSoc
@FightTheFlame5k
@BNightsCRPS
@APainPrincess
@CRPSguru
@BCPSBath
@PainNewsNetwork
@CRPSOrangeDay
@nicholac3
@RSDSA
@forgrace
@WIPConference
@FightingCRPS
Another great talk this morning delivered by @allanboot from #WalsallMoneyAdviceProject on #CRPS and #PersonalIndependencePayments A great response for #CRPSAWARENESSMONTH
Full article: Cognitive Multisensory Rehabilitation, a novel approach for Complex Regional Pain Syndrome: case series tandfonline.com/doi/full/10.10… Thanks to @JenJenslewis for her amazing support on this!
Over 260 posts to check out! To help you understand and overcome chronic pain. Sign up to receive the daily emails. open.substack.com/pub/richmondst… #chronicpain #thepaincoach @PainChampions @PatientBps @BNightsCRPS @CRPSUK @loulouscorpio @FestivalPain
Pain in the Person. A short film. Out now. A conversation between Andy, chronic pain lived experience, and Richmond, founder of Pain Coaching. youtu.be/zidJbZHEGzM #thepaincoach #chronicpain
Congratulations to Hannah Moore, Paratriathlete who won a Bronze medal at the Games in Paris today! Hannah is a member of #CRPSUK .
Happy International Left Handers Day to all of the lovely Left Handed people in the world. #InternationalLeftHandersDay #LeftHandersDay #LeftHanded
That’s the kit sorted for tomorrow! @AFBI_NI @CRPSUK gofund.me/2b928008
A great session with more delegates from the @DWPgovuk this morning speaking about #CRPS. Raising awareness of the condition and how it affects people's lives. A lot done,but a lot more to do!
Please donate to my fundraising so @CRPSUK can provide counselling to those who like me have to learn to manage the direct and indirect impacts of CRPS on our lives. It’s difficult to find a new way to be you, but believe me with support you can do it! gofund.me/cd62f35f
gofund.me/9cd8ee49 £280 raised already! It’s a great boost after a day where my office has been a miasma of peppermint cream, deep freeze and herbal rollon to try and delay an impending flare. Thank you all who are supporting our efforts to help @CRPSUK :)
Reflections and learning on recruiting and working with a public involvement team criisp.uk/2024/02/28/ref…
Listen to find out more about how CRIISP researchers, from Bath Centre for Pain research @BathCPR are working to ensure pain research makes an impact via the @unibath 'Research with Impact' latest podcast: criisp.uk/news-social-me…
New Blog Post CRIISP researchers share their experience of talking about pain with the public at Up Late @ SS Great Britain. Part of @FUTURES_NIGHT: A Festival of Discovery in 2023. Read the post here: criisp.uk/2024/01/10/res… #PPI #chronicpainresearch
Last few spaces available on our adolescent study day… for more info get in touch ruh-tr.RNHRDPMUenquiries@nhs.net 😃 @BCPSBath @JenFord_Physio
Delighted to lead the emotional & personal Scottish Parliament debate on #CRPS, a poorly understood condition where a person experiences persistent severe & debilitating pain. Thank you to my MSP colleagues for their contributions @BNightsCRPS @CRPSUK shorturl.at/gkqN2
📢Myth busting new #CRPS paper challenges🧐 assumption that those with early #CRPS have better rehab outcomes 📢 Our @RUHBath clinical data proved they don't👈🏾 In fact people with CRPS => 1 year do just as well & sustain those improvements once home🏠
Our findings show that people with CRPS can benefit from rehabilitation regardless of how long they have had symptoms Early #CRPS identification & commencement of appropriate treatment as per #royalcollegeofphysician guidelines is crucial
Download📚Open access paper at tinyurl.com/hatdt692
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Who to follow
-
Pain Research Forum
@PainResForum -
Pain Concern
@PainConcern -
The British Pain Society
@BritishPainSoc -
Fight The Flame - CRPS/RSD SUPPORT
@FightTheFlame5k -
Burning Nights CRPS
@BNightsCRPS -
Princess, The Tower
@APainPrincess -
Victoria Abbott-Fleming MBE
@CRPSguru -
Bath Centre for Pain Services
@BCPSBath -
Pain News Network
@PainNewsNetwork -
Color The World Orange™ for CRPS/RSD Awareness
@CRPSOrangeDay -
Nichola Cunningham 🦿👩🦽
@nicholac3 -
RSDSA
@RSDSA -
For Grace: Women In Pain
@forgrace -
Women In Pain Conf
@WIPConference -
Beth Stillitano
@FightingCRPS
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