Bradley Price
@BradleyJPriceDirector of Policy & Public Affairs @ActionPFcharity. Fleeting between hobby obsessions, currently ☕️🥃🍸⛳️♟️🎷 Views my own. (he/him)
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🚨NEW REPORT ALERT🚨 @OneVoiceILD and @ActionPFcharity have launched an Optimum Integrated Care Pathway for transforming ILD services. actionpf.org/get-involved/t…
So grateful to @MichelleWelshMP & @LizTwistMP for highlighting issues faced by people affected by PF in @JimShannonMP's respiratory health debate in Parliament yesterday. Together, we can drive change so that everyone with PF has timely access to diagnosis, treatments & support.
A huge thank you to @SarahGreenLD for tabling some Parliamentary Questions on PF & to the Minister for highlighting our work on a national consensus pathway looking to transform ILD and PF care @ActionPFcharity
Thanks @SarahGreenLD for raising issues in parliament that affect people with #PF. Glad to see @GwynneMP & the Govt recognise APF's contribution to improving access to specialist care. We look forward to working with all parties to ensure all with PF has access to timely care.
We’re launching our campaign ‘Breathe’ for #PFMonth24 Our video, voiced by @BBCRadio2 DJ @piratejw, who's living with PF, shows the devastating effects of the disease. Contains sensitive content. Please share so more people can get support: actionpf.org/get-involved/a… @TiggyWalker
Nominations for awards are open - nominate a colleague or your healthcare professional!
📣ILD-IN AWARD NOMINATIONS📣 We are delighted to be hosting the ILD-IN Awards sponsored by @rotherhamresp and supported by @ActionPFcharity and @patientMpower There are 3 categories: 1. Patient nominated 2. Rising Star 3. Innovation. Get nominating!! ild-in.org.uk/conference/
The #Euro2024 final is at the Olympiastadion, which holds around 70,000 people. That's the same number of people in the UK affected by pulmonary fibrosis yearly. PF is a serious lung disease that affects many, yet awareness is low. Let's spread the word & support those impacted.
it's exciting to hear @wesstreeting on fire at the #FutureofBritain gathering being 💯 on message with our mission at Aneira Health: "DHSC is no longer simply a health services department; it's an economic growth department [we have 3m out of work sick]" "only Nixon could go…
A fantastic couple of days at #BTSSummer2024 with my @ActionPFcharity colleagues talking all things PF, pathways, integrated care, support, and research @stefcormack @WeeLisBigCity @NicolaGriff15
This is amazing! Huge kudos to @fireboyle and the @fire_scot team
‘Unless you’ve been directly helped by a stem cell transplant or know someone who has been, not many people would know about the register. About 20 people came up to chat and thank me for sharing my story afterwards.’ Meet Erin, the 20,000th donor who signed up due to @fire_scot!
Virtual wards will be key in the future of ILD care - key components of this as set out by @ParsonageMaria #BTSSummer2024
Come say hello to @ActionPFcharity on stand 36 #pulmonaryfibrosis #lungscarring #OneVoiceILD
Good morning and welcome to Day 1 of the Summer Meeting for 2024. We are looking forward to seeing you soon for a day of all things respiratory! #BTSSummer2024 #RespIsBest #LungHealth
A great session to kick off #BTSSummer2024 on granulomatous lung diseases with @wigruth @drphilmol @ILDIPFDoc_NI
We were proud to present to the Regional Rare Disease Access to Care Forum, hosted by @boehringer, how lived experience is at the centre of our efforts to drive change. Engaging globally means we can continue to push forward the future of #PF care. @BradleyJPrice
📣@ARNS_UK are seeking an #ILD Lead!!📣 Are you enthusiastic about improving the lives of people living with ILD? If so, you could represent ARNS and influence patient care. Read more here: ild-in.org.uk/arns-ild-lead-… Apply by 19th July 2024 at 5pm
Exciting opportunity for a Band 7 ILD Clinical Nurse Specialist to join our team at Cardiff and Vale University Health Board! Apply now: healthjobsuk.com/job/UK/Cardiff… #NursingJobs #Cardiff #ILD #respiratory #CNS
Change urged as study finds inequality in care for chronic lung disease patients. 'This is unacceptable. Change is needed to ensure that everyone has timely access to diagnosis, treatment, and care' @BradleyJPrice, APF Director of Policy & Public Affairs. independent.co.uk/news/uk/change…
'Collaboration is the greatest asset we have in stopping #PF. Together, we're forging a path towards a future where people are diagnosed quicker, have fast access to effective treatments, and can get all the support services they need, no matter where you live.' - @BradleyJPrice
In the Patient Engagement Policy roundtable, chaired by @ColinEdwards767, @BradleyJPrice , @mattbolzjohn, @jmifourrier, Emmanuelle Clerisme-Beaty&@fratommy75 discussed the importance of including patients in health care decisions especially in the context of research #PFSUMMIT24
Incredibly moving, eloquent and educational talk by @weeClareB @ActionPFcharity at @EU_IPFF #PFSummit24 about her journey with familial PF. Thank you Clare 🙏
A strong rallying cry from @ActionPFsteve to open #PFSUMMIT24: we need a timed pathway for PF diagnosis to put the disease on equal footing with cancer
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