Natacha Bolaños
@BolanosNatLymphoma Coalition | Head of Membership & Alliiances. Patient Advocate interested in R&D, Capacity Building, Patient's rights, Policy. Cooperation is my motto.
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Prof Andres Ferreri, @SanRaffaeleMI @FIL_ETS discussing the difficulties and solutions for Primary central nervous system #lymphoma (PCNSL) at #ESMO2024 @knowyournodes #lymsm
Had the pleasure of spending time with Jana Pelouchova at #ESMO2024. Her unwavering integrity and commitment to honest, impactful #patientadvocacy truly inspire. Conversations like these remind us of the real impact we can make in the #cancer community. #ESMO2024
It was a true pleasure catching up with @JMMartinMoreno during the #ESMO2024 dinner. His passion for public health and dedication to improving #CancerCare are always inspiring. Conversations with him are not only insightful but also a reminder of the heart behind the work we do.
"Thank you to the @EHA_Hematology for your invaluable partnership with #patientadvocacy groups and your commitment to improving clinical practice standards in #lymphoma. Together, we’re making strides towards better care and outcomes. #WLAD2024 @EHAPatient
On #WorldLymphomaAwarenessDay, we focus on the importance of honest conversations between patients and caregivers or family around emotional concerns and how access to specialist resources. Read more about best practices with a debate and CLL patient clinical simulation in our…
📅 Today marks the 20th #WorldLymphomaAwarenessDay. 📣 Lymphoma Coalition's -24 campaign highlights the emotional impact of living with #lymphoma and the need for #HonestTalk. 🗨️ Discover more in the article by Kathryn Perry ⬇️ ebmt.org/ebmt/news/worl… #WLAD2024 @knowyournodes
Today is World Lymphoma Awareness Day #WLAD2024 Grateful to all healthcare professionals encouraging patients with #lymphoma to have Honest Talks, express their feelings, and report symptoms impacting their experience. @DrRaulCordoba @EliLymphoma @FIL_ETS @LymphomaEx @hnhcp
Today is a perfect day to come back to social media. Living with #lymphoma and CLL can be hard and affects how people are feeling. Medical teams can help patients to get the support they need. On #WLAD2024 promote Honest Talk among patients, caregivers and medical teams
::: El ejercicio como “medicamento” :::! Efectos moleculares (+) del #ejercicio LINK: physiology.org/doi/10.1152/ph…
Precision / personalised medicine needs to be connected with PROcision medicine, targeting #patient reported outcomes. #EBMT23 Patient Advocacy Sessions. @TheEBMT_PAC
When it comes to cancer drug side-effects, it’s about what you’ll tolerate to stay alive theguardian.com/commentisfree/…
In 56 countries women (but not men) are subjected to some type of constraint on their mobility, including 31 countries where a woman cannot obtain a passport in the same way a man can. #InternationalWomensDay
The @UN adopted March 8 as #InternationalWomensDay but, @WorldBank estimates that billions of women still lack the same legal rights + equal economic opportunities as men, and inequalities continue along a range of social, political, development, and economic indicators.
And this should be answered in RW by registries. But sadly, there is no proper collection of data at the time of leukapheresis but only from CAR-T cell infusion time. @TheEBMT_CTIWP @TheEBMT @TheEBMT_PAC @knowyournodes @red_terav @EMA_News
How does delayed cell infusion affect outcomes in patients with LBCL receiving CAR-T? Important question asked by awesome co-fellow @AndrewJallouk @MDAndersonNews at #Tandem23 @ASTCT @CIBMTR #lysm #CARTcell
On February 17, 2023, transplant recipients and their loved ones band together to raise awareness about graft versus host disease #GVHD, a difficult complication that affects roughly half of #patients who undergo a transplant using stem cells from a donor @knowyournodes
You can be part of the discussion! We want to hear your experience as #Patient or #Caregiver living with GVHD. Please join us! Register here: bit.ly/3XROGaA #lymphoma @BMTCTN @TheEBMT_PAC @EHAPatient @inspire2live @BeTheMatch @Antonynolan2014 @AcuteLeuk
Graft-versus-host disease (GVHD) is a common, and sometimes serious side effect of an allogeneic transplant (from a donor), but it is still not fully understood. @EUROGRAFT and @knowyournodes join efforts to get insights on patients’ burden and unmet needs over a CAB.
Graft-versus-host disease (GVHD) is a common, and sometimes serious side effect of an allogeneic transplant (from a donor), but it is still not fully understood. @EUROGRAFT and @knowyournodes join efforts to get insights on patients’ burden and unmet needs over a CAB.
La Consulta de #Linfoma Cutáneo del #OncoHealth @Hospital_FJD ofrece a los pacientes un abordaje integral y multidisciplinar con una valoración simultánea por #dermatología y #hematología, integrando nuevas herramientas diagnósticas como la #ecografía clínica cutánea
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Who to follow
-
Anna Sureda
@AnnaSureda5 -
HARMONY Alliance
@HarmonynetEU -
Valentín Ortiz-Maldonado
@ValentinOrtizMD -
Acute Leukemia Advocates Network (ALAN)
@AcuteLeuk -
Raul Cordoba, MD, PhD
@DrRaulCordoba -
CLL Advocates Network
@CLLAdvocates -
Gloria Iacoboni
@gloria_iacoboni -
Lymphoma Coalition
@knowyournodes -
Francesco Bertoni
@frbertoni -
MarieJosé Kersten
@Kersten_MJ -
Dr. Felipe Prósper
@FelipeProsper -
Ana Marín Niebla
@amniebla -
Zack Pemberton-Whiteley (he/him)
@ZPWHITELEY -
Miguel Canales
@DrMCanales -
Stefano Luminari, MD
@StefanoLuminari
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