Arizona Blood Alliance - #AZBloodAlliance
@ArizonaBleed501c3 Organization Dedicated to increasing life-enhancing opportunities for Arizonans living with inherited blood conditions #Hemophilia #VWD #BleedingDisorders
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@CoalitionHemoB
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We are excited to announce that we have a new organization in Arizona that will provide education and advocacy to those living... Nos complace anunciar que tenemos una nueva organización en Arizona que brindará educación y defensa a quienes viven con un desorden sanguinio.
Acompañenos para Hemoteria y mas el 30 de Junio. (Evento será en español) Use el link para registrase. No se lo pierda. conta.cc/3tr364J instagram.com/p/Ce6PjroliaM/…
Just posted a photo @ Tucson, Arizona instagram.com/p/CdY-Q2aPEUH/…
We have a facebook page. Please help us by going and hitting the Like button! facebook.com/ArizonaBlood
Today, 4/17/22 is #WorldHemophiliaDay. This international day of awareness and commemoration is a time to celebrate the many advances in treatment while creating awareness of how far we still need to go. #WHD2022
Did you know? Between 30,000 and 33,000 people in the U.S. are thought to live with hemophilia. The most common bleeding disorder is von Willebrand disease (VWD), which affects about 1 in every 100 people. #hemophilia #bleedingdisorders #WorldHemophiliaDay
If you are in Arizona and are affected by bleeding disorders you should follow us!
Interesting article. hemophilianewstoday.com/2022/03/25/ank…
In these especially difficult times for patients in the Ukraine and those fleeing to their neighbouring regions, we hope that all pharmaceutical companies will find avenues to ensure that life-saving medicinal products reach those most in need!
We are shocked, saddened and deeply concerned for the safety and health of our community members in Ukraine and the region. We very much hope that the situation will de-escalate as soon as possible! The EHC and our broader community is ready to support as we can.
It’s true, bleeding disorders are a rare inheritable genetic disease, but almost 1/3 of hemophilia cases occur in people with no family history of the bleeding disorder. That’s because the gene mutation that causes hemophilia can occur spontaneously. #BDAM #FastFacts
#BDAM #FastFact Number 3! Both Men and Women can have a bleeding disorder. Although hemophilia is more common in men, women can have it too. About 1/3 of women who are carriers of hemophilia experience bleeding symptoms.
Did You Know… About 30,000 – 33,000 people living in the US are diagnosed with a bleeding disorder. To celebrate Bleeding Disorders Awareness Month, our #BDAM Bingo challenges you to take 30,000 steps this month to celebrate our community!
Which federal agency oversees U.S. Hemophilia Treatment Centers (HTCs)? a.National Institutes of Health (NIH) b.Public Health Service (PHS) c.Centers for Disease Control & Prevention (CDC) d.Food & Drug Administration (FDA) #hemob #hemophilia #bleedingdisorders
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Who to follow
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CoalitionHemoB
@CoalitionHemoB -
HemophiliaofGA
@HemophiliaofGA -
FionaRobinsonPhD
@FRobinsonPhD -
BloodStream Media
@BloodStrmMedia -
Angelos Athanasopoulos
@AthanAngelos -
isabella presch
@isabell96270032 -
Aggie Mavis Kisakye, Master of Public Health
@mavis_agnes -
Hemo Girls Rock
@HemoGirlsRock -
South African Haemophilia Foundation
@HaemophiliaSA -
Randall Curtis
@Factor8Curtis -
Jorge de la Riva
@JorgedelaRiva3
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