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Please support my GoFundMe campaign: gofundme.com/f/support-for-…. Please help me share it
Urgent Medical Help for Princess JESS: Urgent Medical Help for little princess Jess urgentmedicalhelp.blogspot.com/2019/08/urgent…
Click here to support Support for the Day Family organized by gofundme.com/support-for-th…
They were living Haiti today,Monday August 26 ,2019 to Boston but unfortunately she still doesn’t have the money and she is scheduled for her treatment August 28,2019 Please contact her directly : Aisha Melyssa Day (509)4033-7171 or email dayaishamelyssa@gmail.com
Jess will start an aggressive treatment plan that include IVIG Immunoglobulin Therapy Occupational Therapy and Speech Therapy and countless scans to make sure no cancer spread to her nervous system and to check in on her to the Best Specialist in Boston since it’s all so rare too
Because of the New Trump Immigration Policy Deportation across US she decided to move back to Haiti because she end up overstaying on the time period on her I94 . She didn’t want to be deported . She moved to Haiti with Jess .
Jess’s mom Aisha decided to donate some of her bone marrow to researchers since her diagnosis is so rare and hope it will help get answers for her .
Jess has been diagnosed with OPSOCLONUS-MYOCLONUS SYNDROME, an extremely rare neurological disorder. Jess had to have surgery to remove her entire adrenal gland to be safe since the tumor was attached.This surgery is to prevent the cancer not to spread to her nervous system .
We learned that Jess has been diagnosed with OPSOCLONUS-MYOCLONUS SYNDROME, an extremely rare neurological disorder (1 in 10 million) that is associated with ocular , motor , behavioral,sleep, and language disturbances , which was a brutal diagnosis.
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