Valerie Wood
@wood_thevales55Retired Advanced Nurse Specialist to be with my husband who has MND;enjoy horse racing past owner Castle Hill Cassie, Proud be with MPRacing Got to Love a Grey
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@TimJAtkinsonMND
@SEWalesMND
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@RWiddecombeMND
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When filling out forms why’s there no option for “unpaid carer” The only options seem to be “homemaker” or “unemployed”. Despite saving the government £168 billion a year & despite 47% working over 90 hrs a wk, we still aren’t recognised or valued @Keir_Starmer
This needs to go viral 🤬🤬🤬
❗️❗️HERE'S KEIR STARMER, JUST 2 MONTHS AGO ATTACKING THE TORIES FOR CONSIDERING REMOVING THE WINTER FUEL PAYMENT FOR PENSIONERS! YESTERDAY, HE APPLAUDED HIS CHANCELLOR RACHEL REEVES FOR ACTUALLY DOING IT! #NEVERTRUSTLABOUR
PLS RT⚠️A warning for Fellow Warriors, we’re not Disabled enough for a Disability Pass!!! 🤬@Disney @WaltDisneyWorld
And absolutely nothing on carers ⬇️ never been so depressed as we’re nearing the end of #CarersWeek
The @UKLabour manifesto shows the party is still shadowboxing on #socialcare policy, with only one major policy - a fair pay agreement - and no detail even for that. Worryingly, there is nothing here that commits a Labour govt to concrete measures in its first term. Short thread.
#TuesdayThoughts Resilience is finding the inner strength to keep going, even when the odds are stacked against you. It's not about avoiding the storm, but exploring and learning about the storm as it passes us by.
Only a hospital rheumatology clinic, would give 9am appointments, tell you on the letter to allow plenty of time, then lock the door until 9am, meaning people who mostly will be in pain having to stand for over 20 mins as all the staff go in. Care? Compassion? @Leic_hospital
We are excited to announce that we have two, 12-month research internships available for aspiring research leaders across our collaboration! If you are a health professional or research delivery staff member, find out more and apply below! 🔗 bit.ly/BRC-Internship
Been informed tonight the Oxford half marathon is “preferred sex” Humans can’t change sex, it is binary & immutable. We cant prefer to be a different sex from the one we actually are. Our sex remains in every single cell in our bodies, forever, It’s blatant sex discrimination to…
A very powerfully worded letter from @AlfDubs to @NICEComms explaining why it is so important to assess #Tofersen the right way for people living with #ALS #MND @UKMNDRI @mndassoc @MNDoddie5 @united2endmnd @MNDScotland
Do see @AlfDubs’ blistering letter to @NICEComms on their inexplicable decision on the drug Tofersen, licenced for use in the US and EU. @MNDPatients will be denied this life-saving treatment in the UK. So damaging for all potential gene therapies! Do read 👇🏼
Today @profcjmcdermott and I have written to the Rt Hon Andrew Stephenson CBE MP, Minister for Health and Social Care, asking for an urgent meeting to discuss how NICE evaluates new treatments for #MND #ALS in light of their decision on Tofersen. @UKMNDRI @mndassoc @MNDoddie5
Quote..📌 Scores of potentially dangerous nurses and midwives could be working in the NHS and putting patients at risk as their cases sit in a growing backlog of misconduct, The Independent can reveal.⁉️ apple.news/Ah0pw1BO7Re-tw…
Whether paid or unpaid - no one should be expected to work 24 hours a day, to never have any guaranteed sleep or days off, no sick leave & no annual leave. But the government expects unpaid carers to do just that, to sacrifice their own health every day because of their failures
So true! I’ve literally just had this published on exactly this issue 🙄 frontiersin.org/articles/10.33…
It’s Christmas!🎄 If you would like to win my @coolmorestud PADDiNGTON beanie please RT & 🤍 and the winner will be announced on Christmas Day at 2pm🐻 x.com/coolmorestud/s…
PADDiNGTON 🔵🟠 🥇G1 Irish 2000 Guineas @curraghrace 27/05 🥇G1 St James’s Palace🎩 @Ascot 20/06 🥇G1 Coral-Eclipse @Sandownpark 08/07 🥇G1 Sussex Stakes @Goodwood_Races 02/08 Four straight Group 1 wins in just 68 days🤩 🆕 @coolmorestud ⬇️
This is amazing!!!! Well done to all !! 👌🏻😍
The goal of the NHS should be to provide high-quality, personalised care to all patients. This requires a shift away from the target-driven approach we often see in the NHS towards a more holistic approach that prioritises the needs & well-being of both patients & professionals.
We are learning more about the story of a white high schooler who was just brutally beaten to death by 15 black students ⚠️ 🚨The group of black teens stole something from one of Johnathan’s smaller friends, then threw the small boy in a trash can! Johnathan confronted them…
This was today in your Epsom branch. @epsomcomet @EpsomMums @BBCSurrey @SurreyLife
… measuring equipment and shoes to her and her child, the staff member said he would only agree to this if she agreed to definitely buying a pair of shoes! Is this your policy on accessibility? Do your staff have disability awareness training? 2/2
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Who to follow
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Tim Atkinson
@TimJAtkinsonMND -
MNDA SE Wales
@SEWalesMND -
Mark Wainwright
@s23mrw -
Simon Mapletoft
@SimonMapletoft -
MNDANorwichWaveney
@MNDANorWave -
Roger Widdecombe
@RWiddecombeMND -
Katy Styles
@WillowKaty -
Tony Goodger ✝️☮️🇪🇺
@Carer26 -
Clare Brennan
@ClareVBrennan -
MNDA West Sussex South
@mndawss -
steve evans
@obi1Evans -
Emma Johnson
@emma_xjx -
Sam Farthing
@sammyfartho -
Louise Rickenbach
@louiserickmnd -
John P
@jpjpjp43
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