M. and S. Shaw
@twoShawsPerson w/ severe #MyalgicEncephalomyelitis #MyalgicE (ME/cfs) & her M.E. advocate spouse/caregiver. Before: Architect, software interaction designer.
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How did it come to this? Read “Thirty Years of Disdain — How HHS and A Group of Psychiatrists Buried Myalgic Encephalomyelitis” by Mary Dimmock & Matthew Lazell-Fairman. NIH, CDC & HHS invented & spread the false psychogenic narrative you describe. dropbox.com/s/bycueauxmh49…
I agree. #LongCovid includes all possible post-Covid conditions. If #MECFS criteria had been applied from the start, we probably would not be in this mess now.
Hundreds of thousands of Texas families have been waiting months for the state to process their Medicaid applications despite a federal requirement to do so in 45 days. Are you caught in the backlog? Help us report on it. propublica.org/getinvolved/he…
Telehealth Will Die In 3 Weeks Without Congressional Action via @forbes forbes.com/sites/judyston…
Allergic diseases may be more neurological than immunological
📌 Excellent resource alert for #ME/CFS and severe #LongCOVID patients from @BatemanHorne , supervised by @LBatemanMD ! Download The ME/CFS Crash Survival Guide for free from the link below. It’s a 49-page manual. batemanhornecenter.org/education/mecf…
Here is a link to a video about Ron Davis and Rob Phair’s recent work on the itaconate shunt with the scientists at the University of Utah. This was a talk we gave at the Bay Area MECFS support group which was recorded over Zoom. drive.google.com/file/d/1rKf1jo…
They’re really trying to do “welfare queen” propaganda for sick people. As we all know, interacting with the American medical system is so enjoyable that people are always splurging on unnecessary medical treatment.
My manager (decent) is interested in ME. I want to send him a small pack: 1> Short reads 2> Long reads 3> Longer reads Examples: 1: ? 2: Mayo Clinic paper and the wikipedia 3: MEPedia, Unrest Any thoughts? Maybe this can be a resource to others.
For those curious about our insurance company, it’s #Regence, which is part of @AnthemBCBS and @BCBSAssociation
Links: thno.org/v11p9376.htm?u… frontiersin.org/journals/immun… frontiersin.org/journals/pharm… cardiab.biomedcentral.com/articles/10.11… frontiersin.org/journals/endoc…
#Metformin influence on vascular health 1. Improvement of Endothelial Function Endothelial cells, which line the inner walls of blood vessels, are critical for regulating vascular tone and blood flow. Metformin enhances the production of nitric oxide (NO), which promotes…
Some critics have cartooned #MECFS as alternate science. Did you know that there have been more than 6,000 papers on ME/CFS published in peer reviewed journals and that one current and one previous member of the OMF Scientific Advisory Board are Nobel laureates? #MEAwarenessHour
Ill for 17 years. Home/sofa-bound for 11 years. Chiefly bedbound since 8 years. Looking at my old me it's hard to believe that this was me. It's hard to believe how many suffered the same fate before and after ME. How many more lives are we planning to waste? #MEawarenesshour.
Brilliant preprint on treatments for #MECFS and #LongCovid. GET is predictably a disaster. medrxiv.org/content/10.110…
"Infection-associated" does not mean that an infection is still be present, although the finding of T cell exhaustion in our work and that of others is consistent with this possibility. Additional research comparing ME/CFS to other IACCs is essential!
We include subjects in our ME/CFS studies without regard to what trigger individuals describe as the cause of their pre-2020 illness, as long as the subjects fit standard ME/CFS diagnostic criteria. Opportunities to participate here: neuroimmune.cornell.edu/research/parti…
The latest paper from the Cornell Center is available at the PNAS website. Our study implicates T cell exhaustion in ME/CFS.
While ME/CFS is infection-associated because the majority of cases can trace onset to an immediately preceding infection, often of unknown identity, further research must be done to find whether or not every case requires infection (e.g., as in MS).
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Who to follow
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Rivka
@Rivkatweets -
Alice Woolf
@me_awareness -
MoleyME 🦔
@MoleyMECaroline -
Andrea Joliat
@AndreaJoliat -
Illustrator Interrupted
@FranceyME -
Colleen Steckel
@KCSteckel -
Katy B
@KatyBruce108 -
Henry Anderson
@macanders -
Kajsa🐈💙💛
@catskajsa -
Susan Kandarian
@susan_mecfs -
James Foulger
@jifoulger -
Leonie Potgieter
@Despicable_M_E -
Liz Burlingame
@LizMEActGA -
Jenny Meagher
@JennMeagher -
Rosalynde Lemarchand
@frenchros
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