Patsy Hinson
@patsyhinsonovarian cancer survivor/advocate, BRCA2 positive, polio survivor. My passion: cancer research.
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Webinar: Open enrollment season is coming! Join us Tues, Oct 15th at 12PM ET to learn about what cancer survivors should consider in assessing their insurance coverage so you can select the best plan for you. Register Now: tinyurl.com/5dzya7h7 #OpenEnrollment #HealthInsurance
Friends’ #ctMoniTR Project aggregates data to address the question, “does change in circulating tumor DNA (#ctDNA) levels from baseline to on treatment associate with long term outcomes?” Project findings will be discussed at #NGDx. friendsofcancerresearch.org/ctdna/
SO excited about the new Advocacy page on the @CancerResrch website - it provides information about our 2 advocacy training programs and highlights our incredible Advisory Advocates. friendsofcancerresearch.org/patients-and-a…
Looking forward to the @CancerResrch cell therapies advocates event tomorrow! You can still register - advocate attendees are encouraged to watch the initial meeting from May 6th as it will serve as a foundation for the discussions. Click the link for more friendsofcancerresearch.org/event/friends-…
#gyncsm Helping patients/families connect w/ each other is one reason we’ve partnered with @smart_patients to create an online gyn cancer community. Join free to share, interact, and learn. Join the Smart Patients GYNCSM community: smartpatients.com/partners/gyncsm
Starting soon! Join us @CancerResrch’s Public Meeting “The Future of Diagnostic Tests: New Data & Modern Policy.” Join live: focr-org.zoom.us/j/86588238443 #FriendsDx bit.ly/3t7MYZ3
📣 CLINICIANS AND RESEARCHERS: Get exclusive access to NCCS information, resources, and webinars. Join NCCS's Survivorship Champions: canceradvocacy.org/get-involved/s…
During the #Diagnostic meeting, we will share findings from the HRD Harmonization Project, launch a new #research partnership in Digital and Computational Pathology, and have a policy discussion focused on advancing diagnostic regulation and development. bit.ly/3t7MYZ3
“Who better to provide guidance on trials than the people you hope to enroll?” #FriendsAdvocate & working group member @stage4kelly on why the #FriendsAM23 discussions about “Incorporating Pragmatic Trial Elements into Oncology Drug Dev.” is so critical. ow.ly/X5cC50Q8wRu
My tips on searching for clinical trials. Would love to know what else you recommend for patients/what has worked for you as a patient? #clinicaltrials #oncology
Patients & Caregivers: Save your spot now for our FREE, online conference on October 14! TriageCancer.org/Conferences Get useful info on health insurance options, work, finances, and more. And, professionals can earn free CE. #TriageTalks #BeyondDiagnosis #CancerRights
Friends @CancerResrch Q2 Advocacy Newsletter is live! Project updates, upcoming events, and education on emerging #science and policies impacting #cancer care and drug development. Excited to be a part of the #FriendsAdvocate community. trib.al/xvugHEn
Seeing dexamethasone and hydrocortisone on this list has significant implications. We use these drugs for chemotherapy induced nausea and treatment of infusion reactions…. Why is the list growing not getting smaller 🤨😱 #weneedchemodrugs @NBCNewsHealth @ABCNewsHealth
Update on #drugshortages: Accord will release on-hold supply of cisplatin. It will release carboplatin too. This will help fill the supply gap until other manufacturers have releases. @US_FDA continues to explore all avenues to meet demand, including temporary importation.
Patient Perspectives About Immediate Access to Test Results Through an Online Patient Portal ja.ma/3JwKdEF via @JAMANetworkOpen part of @JAMANetwork #gyncsm Patients prefer reading results on the portal immediately even if the results are non-normal.
So excited for our new venture! We created a newsletter FOR advocates to learn about our work and how to get involved. The patient voice is critical to our mission - we hope a more accessible platform will provide the foundation for more voices to be heard. #FriendsAdvocacy
Read @CancerResrch's 1st #Advocate newsletter, providing a resource on our ongoing projects, upcoming events, and education on emerging science and policies impacting the landscape of cancer care and drug development. progressforpatients.org/quarterly-pati… #FriendsAdvocacy #ProgressforPatients
To prevent ovarian cancer, for which there is no reliable screening test, a top research group is urging women who are not at a high genetic risk to consider having their fallopian tubes removed under certain circumstances if they are done having children.nyti.ms/3DxhzRI
Everything I have become and everything I have not is both indirectly & directly related to #lungcancer It doesn't define me, but it's been a big part of my identity for 40 yrs. I was originally dx stage Ia. ⬆️ rate recurrence. What process early on gives it the ability to recur?
Why is @jillfeldman4 so good at addressing lung cancer STIGMA? Perhaps because she's been thinking, talking, and writing about it for most of her life. #lcsm iaslc.org/journey-unlike…
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