Megan Adediran
@meganhfnMother of 2 sons with severe #haemophilia A. Founder and Executive Director, Haemophilia Foundation of Nigeria. An Arsenal fan true and true….
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@CoalitionHemoB
@LaurieKelley2
@HemoFoundation
@HemoCouncilofCA
@SaveOneLifeInc
@BloodStrmMedia
@Eastern_pabdf
@HemoGirlsRock
@GatewayHemo
@CReidColeman
@Coach_Barnes1
@cesargarridod
@Jaydeep_Kapadia
@paulanthtaylor
Tomorrow on PV Pod: Stories from the Marrow, we welcome special guest Dr. Brandy Reeves. She helps us dive into an encyclopedic exploration of polycythemia vera (PV). Subscribe Today! bit.ly/pvpodpodcast
Process flawed with methodologist and non haemophilia treaters in lead roles. Patients initially involved all withdrew from the process prior to publication. An additional paper to follow critiquing the methodology. @wfhemophilia @EAHADnews @EHC_Haemophilia @HaemophiliaIRL 3/3
Conclusions: Methodological approach used resulted in categorisation of evidence as weak. Failure to recognise the advantages of modern therapies. May misguide treaters, payers and Governments as they overlook important evidence and incorporate obsolete treatment principles 2/3
A critique of the ISTH Haemophilia Guidelines was published in #Haemophilia Journal today with 49 eminent authors representing a global mixture of expertise, all united in their serious concerns about these guidelines which were already outdated on publication 1/3
Bleeding disorder advocacy efforts can now utilize Voices for Policy Change, a platform by @nbd_foundation and Believe Limited. Check it out at bleeding.org We’d like to thank our partners at @SanofiUS for believing in the power of community voices for change.
Blood Brother Michael Bishop is back with another I’m Fine segment. Listen, Rate, Review, and Subscribe where you get your podcasts! bit.ly/thebloodstream… Presenting Sponsor: #Takeda I’m Fine is presented by @SanofiUS
Thank you for your support in making this dream come true
We are thrilled to share the news of Usman's recent graduation! Usman is a beneficiary of our sponsorship program from Nigeria. We are so happy to hear of his sucess and wish him all the best for the future 🥳 Read Usman's full story: conta.cc/4fB3mnD
Thank tou @SaveOneLifeInc for making the dream of Usman a reality. Read about it
Check out the latest happenings at Save One Life! conta.cc/4fB3mnD #saveonelife #newsletter #hemophilia #bleedingdisorders #newsletter
Tomorrow we've got @hemophiliafed CEO Dan Kelsey on show! Be sure to check it out 😎 Listen, Rate, Review, and Subscribe where you get your podcasts! Presenting Sponsor: #Takeda, visit bleedingdisorders.com to learn more. I’m Fine is presented by @SanofiUS
I agree with you
Did you know that most people will benefit from a plasma product as some point in their lives, given their use in emergency medicine as well as therapeutics? Plasma is not as "niche" a field as one may think. It was an honor to be the #PlasmaProteinForum's opening day keynote…
Join the bleeding disorders community in Dubai for the Comprehensive Care Summit.
The WFH 2025 Comprehensive Care Summit is THE event for the #BleedingDisorder community to learn, connect, & share insights! Don’t miss this chance to network with colleagues, gain expert knowledge, & explore the latest industry updates. Register: bit.ly/3UVkiwM #WFHccs
Dive into Part 1 of our two-part series on Nutrition with thalassemia! Tamara Schryver, the president of @TwPKDnonprofit gives practical tips about nutrition, supplements & more. #ThalPals #Nutrition #Thalassemia pod.link/1639436269 @AgiosPharma
Yes thank you @AdventureHemo
Thank you, @AdventureHemo, for six years at the helm of @SaveOneLifeInc! bit.ly/thebloodstream… Presenting Sponsor: #Takeda, visit bleedingdisorders.com to learn more.
I agree with you and understand first hand what you are talking about as I live in a developing country.
I strongly disagree with this commentary in the journal Blood Transfusion. The authors try to justify the decision of the @WHO to have cryoprecipitate and pathogen reduced cryoprecipitate (rather than FVIII concentrate) for the treatment of #hemophilia in the list of essential…
Quote of the year!
Using the pulpit for profit is a grave misstep. Manipulating God’s name for financial gain is not only wrong but ungodly. #HonorGod #Faithfulness
Very interesting
On the latest Gene Therapy segment, we host Rick Starks, Colin Johnston, Bobby Wiseman for a roundtable discussion to hear their unique thoughts about the gene therapy landscape. bit.ly/thebloodstream… Sponsor: #Takeda It’s a Whole New World brought to you by @CSLBehring
Jess McClean (Page) was a blood sister and rugby star and the light of any room she walked into. We honor her life and her contribution to the bleeding disorder community on this week's BloodStream. bit.ly/thebloodstream… Presenting Sponsor: #Takeda
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Who to follow
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CoalitionHemoB
@CoalitionHemoB -
Laurie Kelley
@LaurieKelley2 -
Hemophilia Foundation of Northern California
@HemoFoundation -
Hemophilia Council of California
@HemoCouncilofCA -
Save One Life
@SaveOneLifeInc -
BloodStream Media
@BloodStrmMedia -
Eastern PA Bleeding Disorders Foundation
@Eastern_pabdf -
Hemo Girls Rock
@HemoGirlsRock -
GHA
@GatewayHemo -
Curtiss Reid Coleman
@CReidColeman -
Welton Barnes
@Coach_Barnes1 -
Cesar A. Garrido
@cesargarridod -
Jaydeep Kapadia
@Jaydeep_Kapadia -
Paul Anthony Taylor
@paulanthtaylor
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