HEVAS
@hevas_nlSupport and advice for patients with hemangiomas, vascular anomalies and over/undergrowth syndromes #ISSVA #Vascern #Hecovan
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ISSVA Members can now register for the #ISSVA2025 Debates & Updates Meeting! Register soon, in-person spaces are limited for this hybrid meeting! issva.org/2025/registrat…
#ISSVA2025 Debates & Updates Reg opens to MEMBERS this Wednesday! Renew your membership now to take advantage! Limited spots available for this meeting. issva.execinc.com/edibo/dues
Abstract selection for #VAC2025 finished. You now have until Sunday November 24th (midnight) to register with the early-bird prize!! vacure-conference.net #vascapa #hevas #cmtc @vascularbiology @vascern @ISSVA_org @EVB_Org
💙 Ever felt alone on your health journey? The 2nd Edition of the VASCA Magazine is here to remind you that you’re not. Read it on our website ➡️ vascern.eu/app/uploads/20… #RareDisease #VascularAnomalies #PatientStories #HealthCommunity
Our friends @hevas_nl have created 2 video blogs from those living with & affected by FIL (a subcategory of PROS) First video features parents of those with FIL: m.youtube.com/watch?v=tNNZdK… The second is those growing up with FIL: m.youtube.com/watch?v=UVjqmC…
🌟 Did you know? #ORPHAcodes are listed in the set of common data elements for Rare Diseases Registration released by the EU RD platform to ensure interoperability between registries. To learn more ➡️ buff.ly/4hlWGv2 #rarediseases
1st JARDIN newsletter is out! Go to bit.ly/3B7qyuw to find out news and events from JARDIN, ERNs, Member States participating in the Joint Action, entities such as @EU_EESC @ERDERA_org , @eurordis @ERICA_RD_EU and many more! #EU4Health #RareDiseases #ERNs #HealthUnion
🚨Deadline Extended! The VASCERN Summer School 2025 application deadline is now November 11, 2024! 🎉 Don’t miss this chance to learn from experts, gain insights into rare vascular diseases, and connect with a supportive community. Apply today! 🔗 vascern.eu/training-and-e……
🚨 Applications are OPEN! Are you a medical student, resident or post-doctoral researcher passionate about rare vascular diseases? Learn from Europe’s top experts, earn 3 ECTS credits, and experience Paris! 🇫🇷 🔗Apply by Oct 27th, 2024👉bit.ly/3XCa32l #RareDiseases
Kicking off #VASCERNDays2024 with VASCERN’s Annual Board Meeting. Prof. Jondeau and Julie Hallac are highlighting key milestones, including new EU projects like @jardin_EU_JA & @ERDERA_org . Lots of exciting work ahead! #RareDiseases #HealthcareCollaboration
Opportunities are now open to join an ISSVA Committee or Working Group. The ISSVA Board of Directors has recently approved several new opportunities to facilitate involvement for ISSVA members! Learn more and apply at issva.org/about-issva/co…
🌍#VASCERNDays2024 is almost here! On Oct 24-25, VASCERN healthcare professionals, patient advocates, and key stakeholders will gather to share insights and advance care for rare vascular diseases. We can't wait to see you. Let’s make a difference together! #VascularDiseases…
Wat is lymfe en wat doet het in je lichaam? Radioloog Willemijn Klein vertelt er meer over in Topdoks. Benieuwd? Kijk het terug via 👉 zapp.nl/programmas/top… (vanaf minuut 13:30)
Abstract submission dead-line for VAC 2025 (lnkd.in/ee8K_374) extended until Sunday 20th October. We look forward to seeing yours! This will be another exciting meeting bringing together clinicians and basic scientists to develop novel #therapies for vascular anomalies.
Ik was vandaag in het @UMCUtrecht .Tot mijn verbazing is de medische psychologie wegbezuinigd, en dat in een groot academisch zkh waar complexe en zeldzame aandoeningen de revue passeren. De plek waar (medische) trauma's ontstaan. Hier wordt te weinig aandacht aan besteedt. 1/
🎓 Curious why students applied for the VASCERN Summer School? From gaining expertise in rare vascular diseases to making a real difference in patient care, their reasons will inspire you! 💡 🗓️ Apply for the 2025 edition before October 27! Don’t wait👉bit.ly/3XCa32l…
Abstract submission dead-line for #VAC2025 fast approaching (lnkd.in/ee8K_374) ! Don’t miss the opportunity to share your work in this unique meeting combining basic science with translational studies and clinical trials! @vascern #vascapa, #evbo NAVBO, @hevas_nl @CMTCOVM
World Fédération of Interventional and Therapeutic Neuroradiology (@wfitn_ny ) with a Great single speaker session by Pr Laurence Boon from @ClinUnivStLuc on Medical Management of #vascular #anomalies. Great discussion! #vascapa @vascern @hevas_nl
After an afternoon of learning about lymphatic malformations, arteriovenous malformations, and hemangioma, we wrapped up with a fun boomerang video with speakers and students at the #VASCERNSummerSchool! 🎥 #RareDiseases #MedicalEducation #PatientCare
Generalized Lymphatic Anomaly (GLA) vs. Gorham-Stout disease (GSD): What’s the Difference? Read our Blog 👉 bit.ly/4gkQ7s6 #ComplexLymphaticAnomalies
🚨 Applications are OPEN! Are you a medical student, resident or post-doctoral researcher passionate about rare vascular diseases? Learn from Europe’s top experts, earn 3 ECTS credits, and experience Paris! 🇫🇷 🔗Apply by Oct 27th, 2024👉bit.ly/3XCa32l #RareDiseases
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Who to follow
-
Miikka. Vikkula
@MiikkaVikkula -
VASCERN
@vascern -
Laurence Boon
@LaurenceBoon4 -
Nevus Netwerk Nederland
@NevusN -
ReumaZorgNL
@ReumaZorgNL -
Crohn & Colitis NL
@CrohnColitisNL -
CMTC-OVM
@CMTCOVM -
LGDAlliance
@LGDAlliance -
Ataxie Vereniging Nederland
@ataxienl -
Heupafwijkingen
@Heupafwijkingen -
Natasha Barr
@caretently -
C. van der Vleuten
@HecovanNijmegen -
VvHuntington
@VvHuntington -
Lynch Polyposis Stichting
@darmaandoening
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