Greg Ryan OAM
@gregmryanAdvocate for all born IA/ARM. Author of “A Secret Life - Surviving a Rare Congenital Condition” & “Rare and Resilient: ONE in 5000 Anthology” and NMFC Historian
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@Me4Ped
@martin_lacher
@JasonFrischerMD
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@DrBernardoNunez
@HiraAhmadMD
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@AbdOmer79
🚨 @ERN_eUROGEN is delighted to announce the release of a new brochure summarising the Patient Journey for Anorectal Malformation (ARM). 💙 Read more here: eurogen-ern.eu/new-arm-brochu… #HealthUnion #EU4Health #RareDisease #UroSoMe #Urology #PedUro #SoMe4PedSurg #AnorectalMalformation
When is the right time to do a Malone? This is a very personal decision for each family and patient. Ideally, the patient has an enema solution that works for him/her, and it has been determined that enemas will be the treatment for life.
We are thrilled to be able to offer a second opinion, regardless of where patients are located. For more information, visit childrenscolorado.org/colorectal-sec… You can choose Dr. Andrea Bischoff or Dr. Luis de la Torre.
For Ep.51 of Rare and Resilient - @ONEin5000 Podcast, we are joined by Sinead from Dublin, Ireland, who is the mother of her 11 year old son Matthew, who was born with #imperforateanus #anorectalmalformation shares their life journey so far.🧡💙 open.spotify.com/episode/0xVj9A…
Tethered Cord happens in 25% of patients born with an ARM. Normally, the spinal cord should be floating freely inside the spinal canal, and the conus medularis should end above L2. When it is below L2, and attached to the bone and/or surrounding tissues, we call it tethered cord.
Congratulations Luke McDonald, you are in very esteemed company. Only the 10th @NMFCOfficial player to play 200 #AFL games, captain the team and be a Syd Barker Medallist, joining Aylett, Dugdale, Dench, Greig, Carey, Stevens, Simpson, Harvey & Swallow.🦘🤍💙 #kangas
This study demonstrates the real world benefits of multi-disciplinary care for cloacal malformations. Incidence of chronic kidney disease reduced from 50% historically to 2.9%. “It takes a village” @NCHColorectal @NCHUrology @NCHforDocs @NCHKidneyCenter
Protecting renal function in cloacal malformation is paramount! @NCHColorectal @NCHUrology @NCHKidneyCenter @NCHUrology ✅ urology involved early ✅ frequent rus and labs ✅ normal renal fxn can be preserved ✅most with renal dysfxn are born with it, rather than acquired
Even with a technically correct operation, 25% of patients born with an anorectal malformation will suffer from fecal incontinence.
Will be giving a talk at APSA 2024 Annual Meeting on Systematic Review Toolkit. A Call to Action: Components of Transition of Pediatric Surgical Patients to Adult Surgical Care. Excited for the turnout! #APSA24 - via #Whova event app
Are laxatives forever? For patients with Idiopathic Constipation and Anorectal Malformation with good prognosis for bowel control, laxatives are usually for life. It is important to understand that laxatives don’t cure the constipation, but they make it manageable.
Join an @ERN_eUROGEN & @ernica_ern webinar supported by @EupsaSurgeons and ARM-Net: 🖥 Gynaecological Issues in Patients with Anorectal Malformation 👥 Lesley Breech & Alejandra Vilanova-Sánchez 📅 Wed 20 Mar, 18:00 CET 🔗 bit.ly/ERNeUROGEN20Ma… #UroSoMe #PedUro #SoMe4PedSurg
Rectal prolapse in Anorectal Malformation: - more common in patients with poor prognosis for bowel control - surgery should only be offered when interfering with the quality of life (excessive mucous production, bleeding, or discomfort) #SoMe4PedSurg
The Importance of Asking a Question – 56 years ago, there was no "match" in #pedsurg, there were no emails nor the internet. Communication happened through regular mail. Dr. Pena sent a letter to Dr. Gross to ask about the opportunity to train under him at Boston Children's.
Medical records are not kept forever in the hospital. In the USA, it varies by State but, generally speaking, records are kept between 10 - 25 y since the patient was last seen. What does that mean? If a patient is now 40 yo, we don’t have access to op notes of reconstruction.
Have you registered for the 68th Pena Course for the Treatment of Anorectal Malformation and Hirschsprung Disease? Happening at Children’s Hospital Colorado, April 15-18. The ONLY course you can learn from the ones who created the surgical procedures: PSARP + PSARVUP + transanal
It is very important that kids with fecal incontinence due to anotectal malformation, Hirschsprung or Spina bifida, understand that it is not their fault that they can’t control bowel movements. #pedsurg #pedscolorectal
For patients who suffer from fecal incontinence the options to stay clean for stool in the underwear are: colostomy, rectal enemas or antegrade enemas. Those are quality of life discussions and the patient should be the one deciding what is the best option for him or her.
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Who to follow
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#SoMe4PedSurg
@Me4Ped -
Martin Lacher
@martin_lacher -
Jason Frischer, MD
@JasonFrischerMD -
The Hendren Project
@hendrenproject -
MCW Pediatric Surgery
@MCWPedSurg -
Colorectal and pediatric surgery news
@SaioaSantiagoMD -
CDH International
@cdhintl -
Lorraine Kelley-Quon, MD, MSHS, FACS, FAAP
@LKelley_Quon -
Tolu Oyetunji
@ToluOyetunji -
Bernardo Núñez
@DrBernardoNunez -
Hira Ahmad
@HiraAhmadMD -
Colorectal Team Overseas
@CTOverseas1 -
Mahmoud Marei
@MMarei_PaedSurg -
Abdulrahman Omar
@AbdOmer79
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