annieslight
@annieslight7Breast cancer dx @ 42-not being informed of my breast density resulted in cancer progression •Patient advocate, patient partner •Educator, animal lover, dog mom
Similar User
@densebreastscdn
@JeanSeely
@CanadaSBI
@mydensitymatter
@DrWesleyBlock
@raalbany
@DenseBreastInfo
@my_screening
@ShielaAppavoo
@SBC_org
@jenniedale24
@learnlooklocate
@JoAnnPushkin
@GitteJoergensen
@outcomes4me
I’m one of the women diagnosed at a later stage due to the secrecy about my breast density. MY OWN BODY, and I wasn’t told. Cancer progressed, leading to aggressive treatments and surgeries. I didn’t have any family history or genetic mutations. I WAS 42 #tellme
More experts weigh in. And yes, we are biased: biased towards reducing unnecessary suffering and death from breast cancer. Women 40-49 are not expendable. Women with dense breasts are not at average risk. @cantaskforce guidelines must be rejected.
All our political parties are in agreement that @cantaskforce breast screening guidelines need to be overturned. Let's get it done! Grateful to @TheHillTimes for publishing my op-ed. #cdnpoli hilltimes.com/story/2024/10/…
One size does not fit all: Canadian non-white women have an earlier peak age of breast cancer diagnosis and higher proportions of cases diagnosed under age 50. They also have an earlier peak age of death, dying on average seven years earlier.
Breast cancer in race/ethnicities other than White has earlier age at diagnosis, higher proportion of cases diagnosed before 50 and earlier age of death. Screening starting at 50 systematically disadvantages women who are not White @JeanSeely @GovCanHealth academic.oup.com/oncolo/article…
And yet @cantaskforce still recommends that women wait till age 50 to start having screening mammograms.
Breast cancer mortality 40% higher in Black women in 40s compared to White. More than 50% cases diagnosed @ stage 3+4 in Black women below 50. Peak age of death 56 in Black but 79 in White women. @CanadaSBI @cantaskforce @markhollandlib @cancersociety @cancerstratCA @OncJournal
“Continued cost of inaction on breast screening guidelines is too high”. The evidence is there; let’s act and prevent unnecessary suffering and deaths. @markhollandlib
Thank you to the @TheHillTimes for publishing our op-ed "Continued cost of inaction on breast screening guidelines is too high." Given what we know, how can we not act? @markhollandlib @drsdelliscc @MPJulian @LailaGoodridge @CPHO_Canada @CanadianPM hilltimes.com/story/2024/10/…
Tomosynthesis (3D mammography) finds more cancers that traditional 2D, AND reduces false alarms. But "it doesn't eliminate the need for supplemental screening for women with dense breasts."
Thank you to @laurencebd_ and @CTVMontreal for this interview! Qc can and must do better when it comes to early detection of breast cancer, by using the available technology and directly informing women of their breast density & implications @cdube_sante montreal.ctvnews.ca/video/c3023311…
Thank you to @laurencebd_ and @CTVMontreal for this interview! Qc can and must do better when it comes to early detection of breast cancer, by using the available technology and directly informing women of their breast density & implications @cdube_sante montreal.ctvnews.ca/video/c3023311…
“Self-referral doesn’t mean that women are not going to face barriers,” said @jenniedale24 the executive director of @densebreastscdn “Health-care providers may still perpetuate the messaging from the national guidelines, which say 50.” @markhollandlib globalnews.ca/news/10828847/…
"Not too young to re-learn how to live and appreciate life. Don’t believe because you’re young that you are immune. That your age, family history, life style will protect you. It won’t. So know your body, do self-exams, and always advocate for yourself. But more importantly, know…
"Not too young for it all to change. Breast cancer does not discriminate by age and affects women in their twenties and thirties, not just older women. Despite this, young women often lack access to routine screening due to their age. It's crucial to be your own advocate and know…
"Living with the BRCA1 gene has profoundly impacted my life, influencing decisions, and shaping my future. Discovering I carried it was a surprising turn in my cancer journey." Cassandra, age 31 | Diagnosed at 28 densebreastscanada.ca/cassandra/
"Not too young to advocate for ourselves. Women my age are not routinely sent for mammograms, even when issues arise. I was told it was just a cyst.. it wasn't. My mission, going forward, is to invite all women to stand together, to raise awareness and to encourage early…
📄Cet article de @katrinedesautel dans @LP_LaPresse cite Erin Strumpf (@mcgillu, CIRANO) et présente les résultats de son étude CIRANO. Lire l'étude : cirano.qc.ca/fr/sommaires/2… lapresse.ca/actualites/san…
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Maybe I did understand what she meant, and that really worries me if that is the case. Finding breast cancer even one stage earlier results in improved outcomes across so many fronts: survival rates are better, treatments are less harsh, recovery time is shorter, return to work…
The way to change outcomes is to find cancers earlier. Not only to reduce deaths, but to give women better quality of life by giving them the opportunity to avoid mastectomy, axillary dissection and chemotherapy. Mammography and supplemental screening do just that.
Finding additional cancers is not the goal.Changing outcomes is. Neither JStart nor DENSE have reported patient oriented outcomes.
Quebec’s #BreastCancer screening policies are failing women. The province lags behind in adopting crucial practices that could save lives, by @jenniedale24 @annieslight7 montrealgazette.com/opinion/opinio… via @mtlgazette @densebreastscdn
Jealous!! But we’re advocating for this in 🇨🇦
#Mammography facilities will now provide #patients receiving a #mammogram with one of two breast density notification statements - "not dense” or “dense” Read more @DenseBreastInfo: 🩷bit.ly/3U08Pvp #BreastCancerAwarenessMonth #DenseBreasts #PatientCare #Pinktober
Thank you to the Montreal Gazette for publishing the patient voice. The women of Quebec deserve the same chance to find breast cancer early as women in the rest of the country. Opinion: Quebec’s breast cancer screening policies are failing women montrealgazette.com/opinion/opinio… via…
📅 J-7 avant le déjeuner-causerie avec E. Strumpf (@mcgillu, CIRANO), T. Perrault (@GVSU) et un panel pour discuter des résultats de leur étude CIRANO « Améliorer le diagnostic du #cancer du #sein au #Québec. » 🖊️cirano.qc.ca/fr/evenements/… @ihsp_mcgill
Issue brought to the attention of U of T 3.5 years ago via a detailed report outlining the flaws of the study and the testimony of dozens of former staff on the study who spoke of these flaws. May 2021. This study has heavily influenced @cantaskforce breast screening guidelines.
I mentioned U of T’s failure to retract the flawed or fraudulent (who can tell?) CNBSS study in my testimony and the impact it has had on my life. I’m not planning to drop this and would love to discuss. @UofTNews @UofT @uoftmedicine
Hello Manitoba! Exciting! 11 jurisdictions have now implemented self-referral in the 40s or announced it. Still time @cantaskforce to join in. NDP government sets timeline for dropping breast screening age to 40 after PCs tried to make it law | CBC News cbc.ca/news/canada/ma…
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Who to follow
-
densebreastscanada
@densebreastscdn -
Jean Seely, MD
@JeanSeely -
Canadian Society of Breast Imaging
@CanadaSBI -
My Density Matters
@mydensitymatter -
Dr. Wesley Block, MD PhD
@DrWesleyBlock -
Roberta A Albany
@raalbany -
DenseBreast-Info.org
@DenseBreastInfo -
mybreastscreening.ca
@my_screening -
Shiela Appavoo MD
@ShielaAppavoo -
Surviving Breast Cancer
@SBC_org -
Jennie Dale
@jenniedale24 -
learnlooklocate
@learnlooklocate -
JoAnn Pushkin
@JoAnnPushkin -
Gitte Joergensen
@GitteJoergensen -
Outcomes4Me
@outcomes4me
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