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RARE-X is a 501(c)(3) nonprofit created by leaders in the fields of patient advocacy, medical research, biopharma, and technology. The Usher Syndrome Data Collection Program will be patient-owned but enabled by @RARE_X_ technology. Learn more: tinyurl.com/ush-rarex-webi…
The Foundation is committing at least $8.6 million for its Uni-Rare Study, a new natural history study for approximately 1,500 people with one of more than 300 rare genes associated with inherited retinal diseases (#IRDs). fightingblindness.org/news/release-u…
Urge members of congress to speed the search for treatments for #UsherSyndrome Become an #USHChampion today! usher-syndrome.org/make-an-impact…
We are delighted to welcome @benshaberman, Vice President, Science Communications @FightBlindness to our #RetinaDublin conference on Nov 4 & 5. Ben will present at Scientific Day and Public Engagement Day. Registrations: retina.ie #Conference #EyeHealth #Dublin
Blindness is not a complete blackout for everyone; it's a spectrum. What does blindness mean to you? #ShareYourVision this October. FightingBlindness.org/ShareYourVision
Estate Planning is a vital component of financial wellness. To celebrate #NationalEstatePlanningAwarenessWeek, the Foundation encourages you to learn more about joining those supporting our research by including legacy gifts as part of their estate plans. FightingBlindness.org/legacy-giving
Retinitis pigmentosa (RP) causes a slow loss of vision as photoreceptors in the retina degrade, which causes loss of peripheral and night vision. If you or someone you love has #RP, use the image generator tool to show others what the world may look like. FightingBlindness.org/ShareYourVision
Today is #UsherSyndromeAwarenessDay, a time to bring attention to the most common genetic cause of combined deafness and blindness. We hope this day can connect those living with Usher syndrome while also helping to accelerate research towards treatments and cures.
Usher syndrome impacts as many as 25,000 people in the U.S. and is the leading cause of combined #deafness and #blindness in the world. If you or someone you love has #UsherSyndrome, visit our website to show others what the world may look like. FightingBlindness.org/ShareYourVision
Ya gotta do what ya gotta do! Now it's your turn - what do YOU do? #ShareYourVision
Today is #WorldSightDay! Over 150 million people around the globe live with a blinding disease, including an estimated 1 in every 33 people in the U.S. Here at the Foundation, we work every single day to help drive the research that will one day put an end to blinding diseases.
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