Pain In The ALS - Fundraising for MND Families
@PainInTheALSKeeping Mike's Legacy going.. A brave & determined 5 yr fight with MND. Read Mikes blogs: https://t.co/KA4cNPfsQE
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The Pain in the ALS 7th Golf Day was epic last Friday..raising over £16k for @mndassoc and @PainInTheALS .. The BIGGEST thanks to all who played, donated, contributed. #forcrispy Thanks to our hosts @Brickhamptongc
Keep going Tim! You're a machine! Lush to see you and we urge anyone for this final week to go out and support where you can. thegreatruggerrun.org A million metres for MND! #MND
A brief stop @OldRichians was followed by a surprise meeting at @CHFPRFC where I met Becki and Freddie Crisp for the first time. Such a joyful moment. Thanks so much for coming out and watch out for those tigers in the grass, Freddie! @PainInTheALS
Day 2 on The Great Rugger Run @MilfordHavenRFC (08:30) > @PembrokeDHRFC (10:30) > @PembrokeRFC (11:45) > @TenbyUTDRFC (14:30) > @Narberth_RFC (17:00) Come and join me or give me a wave! #fordoddie #4ED #freddiecrisp #MND #myname5doddiefoundation #rugbyunited
Huge good luck to the amazing @RuggerRun His epic challenge has begun in West Wales. Tim will total a million metres in 25-days whilst visiting 170+ rugby clubs all of @mndoddie5 @4edfundraising @mndassoc & a little nod to #FreddieCrisp at the end finishing at CheltRFC 💙
This is what awaits @RuggerRun on the last day….
On August 24th I'm due to visit three clubs in the #forestofdean - does anyone know anybody @CaldicotRFC @CRFCWomensRugby @CHEPSTOWRFC @ChepstowRFC_MJ and especially @lydney_rfc (@lydney_rfcU16s) - where I played many times in the '90s representing @GRFUrugby Please RT or tag
Strong, determined, positive...just like Doddie 🩵. Thank you @MNDoddie5 . #MND Community please retweet. We must be relentless in our pursuit of this effective treatment.
We believe that the 8 month delay in gaining sight of the data from the MIROCALS trial involving Proleukin is unfortunate and unacceptable. We call on leaders of the consortium to release the data so research experts can assess it further. Full statement myname5doddie.co.uk/whats-on/artic…
Just amazing..
Former Leeds Rhinos player Rob Burrow is to read a CBeebies Bedtime Story using ground-breaking technology, the first time a bedtime story has been read this way. bbc.com/mediacentre/20…
HUGE thanks to everyone involved in our 5th Annual Golf Day..an amazing £10,000 was raised for Pain in the ALS and @mndassoc (glos). @Brickhamptongc were perfect hosts once again. #forcrispy #legendliveson
Preparations under way for our 5th Annual Golf Day for Pain in the ALS and MND Glos @Brickhamptongc tomorrow. #forCrispy #norainplease
Next Game News as we pitch up to @CSRFCtweets Free league weekend for many so be great to see your support. Monies raised direct to @PainInTheALS @mndassoc #weareeggchasers #forcrispy
Got an absolute blast sorted for both game and dinner… If anyone fancies a seat/table please do get in touch 🤙
Still a few seats left for our spectacular charity dinner following the game v Cherry Pickers. Get in touch to book yours
Excited to share that #mikesbench has arrived! Beautifully restored and pride of place on The Promenade, Cheltenham. Huge thanks to those who donated and made this happen. A great place to chat, stop for coffee or a snooze.. #mikesbench #alwayssmiling #loveyoucrispy
Words can’t convey our sadness, our wonderful Mike’s admirable fight with MND came to an end this morning. He showed such determination to live a full life with us these last 5 years. Gone but not forgotten #legend #MND #painintheALS #alwayssmiling
Keep up to date with our 4th Pain in the ALS charity golf day through the live @vpargolf scoring system club.sms.vpar.com/public/tournam… @VenatourTravel take an early lead as always.. Keen to be first to the bar!
Today was the memorial of a man who helped shape mine and so many others time playing rugby. Woody you were taken far too early and your are missed by many. It was important to me to show my face but absolutely exhausting saying hello to everyone. #MND
Please get behind this incredible achievement.
Another fellow Chetonian diagnosed with this evil disease
A retired Cheltenham police officer who dedicated 33 years of service has been cruelly diagnosed with life limiting motor neurone disease one year before he was due to retire gloucestershirelive.co.uk/news/cheltenha…
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Who to follow
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David Setters
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Esther Fifield @ MND
@EstherMNDAssoc -
Rachel Brown
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@MNDwestsussex -
MummywithMND
@MummywithM -
David Whalley
@DavidW_MND -
Ian Lev
@lev_ian -
Rachel
@rachel_MND -
StampOutMND
@StampOutMnd -
MNDANorwichWaveney
@MNDANorWave -
Roger Widdecombe
@RWiddecombeMND -
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Lee Millard
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