IPF Awareness
@IPFawarenessAiming to increase awareness of Pulmonary Fibrosis, support charities in helping improve the outcomes and quality of life for patients with this disease
Similar User
@ActionPFsteve
@EU_IPFF
@ActionPFcharity
@pulmonaryfibros
@BoltonFibrosis
@ipf_manchester
@ild_inn
@Breathingmatter
@IPFthurles
@ILFA_Ireland
@ILDIPFDoc_NI
@Istamina
@anmari_russell
@PFNI_NIRELAND
@DrPeter_George
Like reading? 📚Love cats? Why not enter our caption competition to win some books including The No 2 Feline Detective Agency kindly donated by author Mandy Morton ☺️ help raise awareness of Pulmonary Fibrosis #cureipf #lungdisease Enter on Facebook here facebook.com/share/p/167CzM…
Head over to Facebook for a chance to win 3 books to help raise awareness of Pulmonary Fibrosis 💜 Open to all in the uk ☺️ #booklovers #catlovers #pulmonaryfibrosis facebook.com/share/p/19pXPG…
Thinking of everyone who has lost power and uses oxygen concentrators to breathe. Added anxiety 🥲 good to have a portable flask filled. Can’t begin to imagine the stress this would cause and potential harm #pulmonaryfibrosis
Clinical Studies from around the world for Pulmonary Fibrosis clinicaltrials.gov Glad to see there are 154 recruiting 🙂 #cureipf #clinicaltrials #pulmonaryfibrosis
We’re fundraising for Pulmonary Fibrosis @ActionPFcharity in memory of mum. It would have been mums and dads 50th wedding anniversary this week 💜 #cureipf #pulmonaryfibrosis please help if you can 😊 justgiving.com/page/pulmonary…
🇮🇹 Buongiorno Milano! The ERS Congress 2023 starts today for its 33rd year - we’re excited to welcome so many of you onsite in Milan & online. Use #ERSCongress to join the conversation. Visit the live platform: live.ersnet.org
September is Pulmonary Fibrosis Awareness Month 💜 Please share. #pulmonaryfibrosis #ipf #lungdisease #oxygen Progressive lung scarring makes it more difficult to eat, breathe, talk, move, live. Imagine being connected to oxygen cylinders and concentrators all day and night.
📣 Do you have pulmonary fibrosis (PF), or have you cared for someone with PF in the last 12 months? If so, we want to hear from you. 🗣 We need your voice to help us change things for the better. ⬇️ Please complete our survey and share it with others: actionpf.org/news/survey2023
Whist still sometime away I highly recommend saving the date and attending my favourite conference of each year - especially if you are a #ILD focused HCP or advocate - my best & most important learnings have been at this event
ILD-IN are excited to share the dates of our 2023 conference!! We look forward to seeing you all there.
It's official! I am thrilled to relaunch our support group starting 7th of July.. spread the word. @ActionPFcharity @ActionPFsteve @ruthwilliams83 @joseph_ALUK @JennyLynchWils @ild_inn @ILDNurse @SandvilleSHF
3 years since mum died. We haven't forgotten the pain, stress, anxiety caused by Pulmonary Fibrosis as you struggle to breathe eat talk move. Oxygen tubing, many cylinders. Worrying about running out of oxygen as companies don't deliver it! Imagine #cureipf #pulmonaryfibrosis
❗️Oxygen tubing ideally Colour coded according to device connected to. More comfortable- essential especially wearing 24/7 Reteactable for the concentrator so feel less tethered, not tripping. Have there been any advancements in the past 3 years? 🤞#ipf #oxygen #QualityOfLife
In our attempt to raise awareness of Pulmonary Fibrosis, an incurable, terminal lung disease, one of the things we have is #aroundtheworldwithtpfsg We would love it (& appreciate it) if @xandvt would join our 'Famous Faces' gallery and have a pic taken with our poster please 💜
Well that’s a wrap! 🎬 #OneVoiceILD has been born! The start of greater collaboration to improve the health and wellbeing of people affected by PF and the workforce that supports them. More to follow… @Sue_NHiS @ActionPFcharity @ActionPFsteve @ild_inn @NHSEngland
We are pleased to announce we have been chosen to be one of the new 12 regional centres for Singing for Lung Health by the British Lung Foundation The BLF has also awarded us a grant of £500 We hope to have the weekly sessions running from July this year youtu.be/WlL49OqF4gM
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Who to follow
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Steve Jones
@ActionPFsteve -
EU-PFF
@EU_IPFF -
Action for Pulmonary Fibrosis
@ActionPFcharity -
Pulmonary Fibrosis News
@pulmonaryfibros -
Bolton Pulmonary Fibrosis Support Group
@BoltonFibrosis -
IPF Manchester
@ipf_manchester -
ILD-IN
@ild_inn -
Breathing Matters
@Breathingmatter -
Liam Galvin
@IPFthurles -
ILFA Ireland
@ILFA_Ireland -
ILD IPF Doc: Nazia Chaudhuri
@ILDIPFDoc_NI -
Laura Fabbri
@Istamina -
Prof. Anne-Marie Russell 🎗️♀️⚕️
@anmari_russell -
Pulmonary Fibrosis NI
@PFNI_NIRELAND -
Peter George
@DrPeter_George
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