@HealthEDena Profile picture

Dena Mendelsohn

@HealthEDena

Pro privacy & access to affordable quality healthcare for all. Privacy @Transcarent and tweets only rep me. Alum @ConsumerReports. @[email protected]

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Roses are red Violets are blue HIPAA has got one P As for As, it's got two. #HealthPolicyValentines


Damned if you do [have health coverage] damned if you don’t. Mental health care in America means trying to find an in-network therapist or gambling on what an app not covered by a health plan will do with your data. Health care and data privacy should be a right not a privilege.

FTC to ban online counseling service BetterHelp from revealing consumers’ data, including sensitive mental health information, to Facebook and others for targeted advertising: bit.ly/3ZvGRrU



Tell me again why the burden should be on consumers to protect data. Apple Is Tracking You Even When Its Own Privacy Settings Say It’s Not, New Research Says gizmodo.com/apple-iphone-a…


Dena Mendelsohn Reposted

My last @ConsumerReports story, and stop me if you heard this one before: TikTok tracks you when you're not on TikTok. Websites like Planned Parenthood, the Mayo Clinic, and the Girl Scouts are using pixels to send TikTok identifiable information about you consumerreports.org/electronics-co…


THERES TWO A’S IN HIPAA BUT ONLY ONE P AND PEOPLE ALWAYS THINK THAT ONE P IF THEY EVEN REMEMBER ITS ONE P STANDS FOR PRIVACY BUT IT DOESNT IT STANDS FOR PORTABILITY WHICH SEEMS ODD UNLESS YOU UNDERSTAND THAT HIPAA ISNT A PRIVACY LAW BUT ITS THE BEST WE HAVE BECAUSE

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Alexa, make a clever joke about Amazon hoovering up consumers' data with its acquisition of a smart vacuum company while consumers privacy and data rights are still a giant unknown. theverge.com/2022/8/5/23293…


Dena Mendelsohn Reposted

It's #FreeMapMonday! Re-tweet and follow us for a chance to win the Sunshine and Evaporation map of 1969! We're going on a cross-country road trip this month with some National Atlas maps! #USGSStore (U.S. residents only)

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Patients have had right of access for decades but some providers still refuse to make medical records available in a timely manner. Pathetic.

Today, OCR announced the resolution of 11 investigations in our #HIPAA Right of Access Initiative, bringing the total number of these enforcement actions to 38. Learn more here: hhs.gov/about/news/202… 1/2



Read this through the lense that HIPAA and state privacy laws have exceptions for sharing with law enforcement: “Aetna … said it would ‘ensure our data practices comply with all applicable laws protecting the privacy of our members.’” nytimes.com/2022/06/27/bus…


I hope this means @CRAdvocacy is returning to its mission to advocate for affordable, quality, healthcare for all. The S.Ct's decision doesn't mean we need another article (though this is a good one) it means we need more advocates and pressure on lawmakers to pass actual laws.

Consumer Reports has long supported access to safe, affordable healthcare for all consumers. Today’s Supreme Court decision on Roe v. Wade threatens that access—so we’re covering what the decision might mean for you. consumerreports.org/health-privacy…



Dena Mendelsohn Reposted

⚠️ Abortion services remain legal in California. If a health plan denies, changes, or delays medical services, we urge Californians to contact @CADMHC Help Center at 1-888-466-2219.

Joint Statement from @Cal_HHS @CADMHC @DHCS_CA Leaders on Continued Access to Reproductive Health Services. Read the full statement: bit.ly/3Nk0uwC

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Dena Mendelsohn Reposted

Which states are most impacted by the recent Supreme Court ruling? Will conversations with my healthcare provider about abortion remain private? Here’s what you need to know. #RoevWade consumerreports.org/health-privacy…


HIPAA is not a privacy law and the privacy protections it affords are limited. When sharing health info, ask whether the recipient has to comply with HIPAA. @thomasgermain provides an explainer about what HIPAA does and, especially, does NOT do for you. consumerreports.org/health-privacy…


Dena Mendelsohn Reposted

News on the privacy front is not great, there's a lot of misinfo after the SCOTUS memo. @hnorms & @KHNews give you the straight dope on #period #trackers from a wide variety of experts like me, @HealthPrivacy @EFF @giulia_de_togni Hope it helps. politifact.com/article/2022/m…


Reupping this very relevant thread today.

Repro health apps are offered as an empowerment tool for consumers eager for power and agency over their health. Yet at the same time, many health apps do not have proper privacy standards in place, which too often results in sensitive health data falling into the wrong hands.



Dena Mendelsohn Reposted

Sorry to learn of the death of disability advocate Sheryl Grossman. Was one of first I called in March 2020 to talk about risk of COVID. She’d dealt with 12 cancers by then. There were doctors--ones she saw every week--who worked hard to keep her alive. But others,

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Dena Mendelsohn Reposted

I was a Theme Leader for the Data Security, Privacy, and Ethics” theme and saw great abstracts for @AcademyHealth’s #hdaplooza #NHPC22. I hope I'll see you there! (Remotely for me!) academyhealth.confex.com/academyhealth/…


Tripped out of the gate but I answered 11/12 questions correctly on @kff No Surprises Act Quiz. Test your knowledge: kff.org/quiz/no-surpri…. So excited all those years of advocacy brought us here.


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