@ENDMECFSdotORG Profile picture

Mark Camenzind

@ENDMECFSdotORG

Joined October 2015
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polybio.org/fall-2024-symp… Excellent talks, 10 minutes each,8am-noon PST Friday on ME/cfs, Long Covid R&D, funded by Polybio, summarizing projects they have funded.


Mark Camenzind Reposted

BREAKING NEWS: Former Republican Governor Arnold Schwarzenegger has just ENDORSED Kamala Harris! “I will always be an American before I am a Republican. That’s why, this week, I am voting for Kamala Harris and Tim Walz. President Trump…will divide, he will insult, he…


Mark Camenzind Reposted

This isn’t an ad. It’s a call to arms.

From Kamala HQ

Add your voice to this campaign! nwmd.social/s/twitter/4g6B… Need you to help M.E., that affect millions incl my disabled son. Please sign to make America Healthy Again!


The future is now, almost. Elon Musk talks at 56 minutes into this event. Introduces Robotaxi, Robovan, Humanoid Robot. 16 hrs ago, 9 million views already. Are you ready for the brave new world, according to Elon?


Mark Camenzind Reposted

Read Solve President & CEO Emily Taylor’s op-ed in @OpenAccessGov calling for the establishment of a dedicated infection-associated chronic conditions (#IACCIs) research office at the National Institutes of Health (@NIH). ow.ly/4byl50TJkcl

PlzSolveCFS's tweet image. Read Solve President & CEO Emily Taylor’s op-ed in @OpenAccessGov calling for the establishment of a dedicated infection-associated chronic conditions (#IACCIs) research office at the National Institutes of Health (@NIH). 

<a style="text-decoration: none;" rel="nofollow" target="_blank" href="https://t.co/blgxLObJ11">ow.ly/4byl50TJkcl</a>

Mark Camenzind Reposted

Thanks @NPR for covering this week's @NIH #RecoverTLC meeting & the call to accelerate interventional, patient-centered trials. Grateful to share @LCCampaign perspective & that all of our collective, cross-community advocacy is keeping #LongCOVID needs & developments in the news.


Mark Camenzind Reposted

Upcoming webinar: "Long COVID: An Emerging Global Health Crisis" Tuesday, August 27th, at 11:00am EDT (10:00am CDT, 5:00pm CEST). Guest speakers include Nancy Klimas and Ziyad Al-Aly

bhanlon15's tweet image. Upcoming webinar: "Long COVID: An Emerging Global Health Crisis"

Tuesday, August 27th, at 11:00am EDT (10:00am CDT, 5:00pm CEST).

Guest speakers include Nancy Klimas and Ziyad Al-Aly

Mark Camenzind Reposted

VP kandidaat Walz's jaarlijkse budget voor Long Covid onderzoek in de staat Minnesota is hoger dan dat van Nederland per capita. Dat is bovenop het Federale budget wat een veelvoud hiervan is. Waar zijn we mee bezig? Investeer eens in je bevolking! motherjones.com/politics/2024/…

riendebock's tweet image. VP kandidaat Walz's jaarlijkse budget voor Long Covid onderzoek in de staat Minnesota is hoger dan dat van Nederland per capita.

Dat is bovenop het Federale budget wat een veelvoud hiervan is.

Waar zijn we mee bezig? Investeer eens in je bevolking!

<a style="text-decoration: none;" rel="nofollow" target="_blank" href="https://t.co/SpjZCBRCT6">motherjones.com/politics/2024/…</a>

Mask Bans are disability injustice, discrimination and violation of human rights. Defend our right to mask protection. Write to U.S. officials to ask them to prohibit Mask Banning and provide mitigation tools instead. #StopMaskBans actionnetwork.org/letters/stop-m…


The looming public health challenge of long covid washingtonpost.com/washington-pos… You sign up to attend virtually at non cost to this important Long Covid event. Need to include ME/cfs that is similar.


Mark Camenzind Reposted

Our organs age at different tempo. About 1 in 5 of us are "extreme agers" for an organ. 3 recent reports highlight how we can track that and the exciting implications for these internal clocks. In the new edition of Ground Truths (link in profile, open-access)

EricTopol's tweet image. Our organs age at different tempo. 
About 1 in 5 of us are "extreme agers" for an organ.
3 recent reports highlight how we can track that and the exciting implications for these internal clocks.
In the new edition of Ground Truths 
(link in profile, open-access)

Mark Camenzind Reposted

So much respect for @thephysicsgirl & Kyle for this awareness fundraiser. Severely sick yet using her giant platform to show ppl #LongCovid & #MECFS - to seek urgently-needed public awareness & research $ - screens live on Sun morning here in NZ w top speakers & discussions

📣 Join @thephysicsgirl Livestream! Dianna will be live-streaming a day in her life, showcasing what it’s like to suffer from #LongCOVID and #MECFS. 🗓️ July 6, 2024, 6:45 AM to 6:00 PM PT on PhysicsGirl YouTube channel. ℹ️ More info: omf.ngo/physics-girl/

OpenMedF's tweet image. 📣 Join @thephysicsgirl Livestream! Dianna will be live-streaming a day in her life, showcasing what it’s like to suffer from #LongCOVID and #MECFS.

🗓️ July 6, 2024, 6:45 AM to 6:00 PM PT on PhysicsGirl YouTube channel. 
ℹ️ More info: <a style="text-decoration: none;" rel="nofollow" target="_blank" href="https://t.co/aLen2H6kpg">omf.ngo/physics-girl/</a>


Surgeon General issues landmark advisory declaring gun violence a public health crisis cmadocs.org/newsroom/news/… This is way overdue, since more kids die now from firearms than from car accidents. This should not be happening in a "civilized" country.


Great to hear today NIH director at Senate LHHS hearings talk about Long Covid and ME


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