Dr Hng + Friends
@DoctorwithMEAuthor of "Doctor with M.E." Founder of Doctors with M.E. (DwME), international professional association. Views our own (me + friends) not DwME.
Similar User
@DecodeMEstudy
@MEResearchUK
@CortJohnson
@BatemanHorne
@s4me_info
@LBatemanMD
@mecfsbiobank
@MEActNetUK
@benh_mecfs
@keithgeraghty
@Huisarts_Vink
@me_awareness
@OxMEDiscovery
@4Workwell
@ABrokenBattery
New handout for doctors by @DoctorsWithME Links to all the best resources worldwide, so it's basically a collated educational package! #MEAwarenessDay doctorswith.me/me-cfs-top-tip…
RIGHTS AND OBLIGATIONS IN ME/CFS Making expected standards clear - it has been done before. See the SEND Code of Practice, which is also relevant to children with #MECFS and #LongCovid #LongCovidKids. assets.publishing.service.gov.uk/government/upl…
“We propose a simple solution which explicitly removes the perception of optionality in meeting basic standards in the care and service of ME/#CFS patients. It takes the form of official guidance called ‘Rights and Obligations in ME/CFS’” #MEcfs #PwME #MyalgicEncephalomyelitis
Rights and Obligations in ME/CFS: Overcoming normalised disregard for standards doctorswith.me/rights-and-obl…
#ME patient rights 👇 “A patient complains of life-changing, severe fatigue along with multiple perplexing symptoms. Her doctor does not believe in ME so diagnoses her with anxiety / Functional Neurological Disorder / other without investigation”
Rights and Obligations in ME/CFS: Overcoming normalised disregard for standards doctorswith.me/rights-and-obl…
In retrospect, the only influence that stopped me from getting even more sick with #LongCovid was—not my doctors, not my employer, not the health authorities—but a collection of sick strangers on Twitter
#pwME: If you want health and social services to know what their obligations are towards you, be sure to mention @DoctorsWithME's guidance on RIGHTS AND OBLIGATIONS IN #MECFS when the ME/CFS Delivery Plan in the UK is open for wider engagement. #LongCovid doctorswith.me/rights-and-obl…
@DoctorsWithME, the global professional association in the field of postviral disease, wishes @ThereseCoffey the very best in her new role at @DHSCgovuk We look forward to continuing positive progress, introducing the scientific consensus into medical practice #MECFS #LongCovid
Announcing: @DoctorsWithME has joined @DHSCgovuk Attitudes and Education working group, part of their ME/CFS Delivery Plan. Also taking part in their workshops on healthcare, social care, welfare, children & young people. Working hard for #MECFS #LongCovid.
Just want to thank the following people for everything they are doing to help people with ME. Cure ME Biobank, Doctors with ME, Physios for ME. and ME Association, Dialogues for ME CFS @mecfsbiobank @DoctorsWithME @PhysiosForME @MEAssociation @DialoguesMECFS
Just seen this job add for a "specialist" ME/CFS service. Aren't we moving away from thinking #MECFS is a psychological condition? #LongCovid
This is an advert for a very expensive clinical psychologist for the #chronicpain & ‘fatigue’ (presumably they mean #MECFS?) services at @BucksHealthcare These are not psychological conditions, & the only role of psychology should be supportive. What is going on here?
This is an advert for a very expensive clinical psychologist for the #chronicpain & ‘fatigue’ (presumably they mean #MECFS?) services at @BucksHealthcare These are not psychological conditions, & the only role of psychology should be supportive. What is going on here?
Completely agree, @DrGrounds! Having ME was a real eye-opener. doctorswith.me/a-doctor-who-d…
I saw my last patient a year ago today. I miss medicine greatly. Yet #LongCovid has taken me on the biggest learning curve of my career. Amidst all the suffering, I have discovered so much about chronic illness that I was never taught. 1/2
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Who to follow
-
DecodeME the ME/CFS Study
@DecodeMEstudy -
ME Research UK
@MEResearchUK -
Cort Johnson
@CortJohnson -
Bateman Horne Center
@BatemanHorne -
Science for ME online forum
@s4me_info -
Lucinda Bateman
@LBatemanMD -
CureME - UK ME/CFS Biobank
@mecfsbiobank -
#MEAction Network UK
@MEActNetUK -
Ben H
@benh_mecfs -
Dr Keith Geraghty
@keithgeraghty -
Mark Vink, MD
@Huisarts_Vink -
Alice Woolf
@me_awareness -
MortenGroupOxford
@OxMEDiscovery -
Workwell Foundation
@4Workwell -
Adam
@ABrokenBattery
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