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Thank you Kerala govt. @iprdkerala for extending support to Spinal Muscular Atrophy patients through the free medical assistance scheme! Providing solace and care to those in need. #KeralaCares #HealthcareHeroes #KeralaModel @CMOKerala @VeenaGeorge03 @KeralaHealth @drrahulur…
#SMAawarenessMonth Day 9: 🧬 Decoding SMA Carriers: What You Need to Know 🧬 Curious about the implications if both parents are SMA carriers? Our fact sheet has you covered! Uncover vital insights into the possibilities and considerations when both parents carry the SMA gene.…
Today's #SMAjourney is on "UnyieldingHope: A Father's Battle Against SMA" Mr Pradeep Jaiswal's journey from Bihar reflects the determined fight against #SMA for his sons Hemant & Ayansh. Despite hospital hurdles and neglect, their shared strength and online community support…
#SMAawarenessMonth Day 8: Unlocking SMA Genetics 🧬. Ever wondered about the chances of SMA in a baby when one parent is a carrier and the other is not? 🤔 Our fact sheet today dives into this common query, shedding light on the intricate world of #SMA genetics. Stay informed…
🌟 Inara's Inspiring Journey 🌟 Meet 2.5-year-old Inara Maryam from Kerala, bravely battling SMA Type 1. Her family faced challenges due to early respiratory issues. Her condition was very severe and the medical care she received at @ManipalHealth helped her fight…
#SMAawarenessMonth Day 7: 📢 Understanding and spreading awareness about the genetic basis of #SMA (Spinal Muscular Atrophy) is crucial. In each pregnancy of a carrier couple, there's a 25% chance of the child being affected by SMA, a 50% chance of the child being a carrier like…
#SMAJourney : Meet the inspiring Keya Hatkar, a young girl from Vizag now making waves in Mumbai as the author of "Dancing On My Wheels". Her book's success shines even brighter, having become a best-seller in BriBooks' National Best Seller's League among 1 lac entries. Kudos to…
🏃♂️🚴♀️ Excitement is building up! Just 1 day to go for the Run/Ride for SMA event in Hyderabad, India. Join us to raise #SMAawareness and support those battling Spinal Muscular Atrophy. Let's make every step and pedal count in this inspiring journey! 🎗️💙 #RunForSMA #RideForSMA
Lace up your sneakers for a great cause! Join us at "RUN/ RIDE for SMA" in Hyderabad, India, as we run to raise awareness and support for Spinal Muscular Atrophy. Let's make every step count in the fight against SMA! 🎗️💙 #RunForSMA #Hyderabad #SMAAwareness
Devastating SMA diagnosis, overwhelming journey. Meet Akriti, our little #SMA type 1 princess from Mumbai, Maharashtra. Her story reflects strength, hope, and love. 🌟💙 #SMAJourney #SMAawareness #BattleAgainstSMA
#SMAawarenessMonth Day 5: Genetic counseling after an #SMA diagnosis is crucial! Understanding the implications & inheritance patterns helps families make informed decisions. It empowers us to plan for the future, provide the best care & support. #BattleAgainstSMA #SMAAwareness
Grateful to Dr. Mary Iype Ma'am @MaryIype45489 for the insightful article "A Panoramic View of Spinal Muscular Atrophy." Use of simple language allows patients & laymen to understand this complex condition better. Thank you for spreading awareness & empowering us! #SMAAwareness
Today meet #SMAwarrior Deeksha Sampath, a 13-year-old SMA warrior from #Bengaluru! Despite facing challenges, she never loses her courage and determination. Let's rally together to support her journey towards independence! 💪🏼 #SMAawareness #BatleAgainstSMA #TowardsMoreMilestones
#SMAawarenessMonth Day 4: SMA is complex, & a multidisciplinary healthcare team plays a vital role in our care. From breathing to mobility,they support us in managing this rare disease. Let's appreciate their dedication! 🤝 #BattleAgainstSMA #RareDisease #TeamApproach #SMAcare
Witness the extraordinary journey of dear #SMAwarrior, Aditya, as he bravely battles #SMA 💪 . Despite the challenges, his strength, willpower, and belief in a brighter future are awe-inspiring! 🌈 Join us on this inspiring path & spread #SMAAwareness ! #BattleAgainstSMA
#SMAawarenessMonth Day 3: Today we are posting a few rare SMA types🧬 .This condition affects many lives, and awareness is crucial for support and understanding. Let's come together to shed light on these lesser-known types. Join us in raising #SMAawareness . #BattleAgainstSMA
Meet Diya, a true fighter! Born with #SMA, her physiotherapist mother noticed "something not normal with development." Their search led to the life-changing #Zolgensma GMAP. Early diagnosis & treatment changed the course of disease! #SMAAwareness #BattleAgainstSMA #SMAckSMA
#SMAawarenessMonth Day 2: Let's shed light on the challenging journey of #SMA diagnosis. From finding better care providers to researching treatments & managing costs, it's overwhelming. Today's factsheet unveils this crucial journey! #SMAAwareness #SMAJourney #BattleAgainstSMA
#SMAawarenessMonth Day 1 : SMA world is evolving! While SMA remains a significant genetic cause of death, there's hope with the promising therapies on the horizon - #Evrysdi #Zolgensma #Spinraza . #SMAawareness #GeneticHealth #HopefulFuture #BattleAgainstSMA #SMAckSMA
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