Birdtableseed
@BirdtableseedNot always able to keep up with twitter due to ill health Our family lives with long term post viral illness called myalgic encephalomyelitis known as ME/CFS
Similar User
@Klang764
@SockFoam
@Squashedhedgi
@Th3birdman333
@MEnaced_2016
@aliinthewoods
@TheNakedWeaver
@ThisisMEtweety
@gv_gnett
@bettyteapot00
@Walk_4_ME
@KatieAc23
@AlongsideME
@farbeyondtired
@hilarypbest
Our family are hoping that updated health guidelines for ME/CFS will be implemented soon. Doctors are now officially instructed to provide medical support, disability aids and social care to ME/CFS patients. Change should have begun a year ago but still waiting … NG206 / 2021
'We were told by many people that the current treatment they're receiving is harmful.' The lead researcher on the Decode ME Study, Professor Chris Ponting, outlines the responses he has received from ME patients on their care. trib.al/Rx0iR33 📺 Sky 501
A promise by @NHSEngland to "review ME services" sounds like a way to placate patients and further delay meaningful change. If they were serious about implementing change, they would have done so in 2021, immediately after the release of NICE guidelines. #MyalgicEncephalomyelitis
'NHS to review ME services after death of Maeve Boothby O’Neill' #myalgicencephalomyelitis #cfsme #myalgice #mecfs thetimes.com/uk/healthcare/…
I am asking my new colleagues @BrockAnnaDr @GrandeBettina and @GrandeTilman for their support with the #LemonChallengeMECFS. Together we try to establish care structures for patients suffering from very severe MECFS. And we need a lot more support.
Supporting the #LemonChallengeMECFS. The lemon as a symbol for the bitterness of the disease but also for the hope of healing. Please share and support the @MECFSResearch Foundation.
"Brexit has ruined this country, and now the majority of Britons thinks so too." RT if you are that majority.
The latest paper from the Cornell Center is available at the PNAS website. Our study implicates T cell exhaustion in ME/CFS.
1) Which ME/CFS studies did the National Institutes of Health (NIH) fund in 2024? We published a new blog post that briefly describes all projects. mecfsskeptic.com/nih-funding-fo…
Just published: Confirmed: The Conclusion by NICE that CBT is not an Effective Treatment for ME/CFS; Re-Analysis of a Systematic Review scibasejournals.org/neurology/1022… #MEcfs
Am 12./13.5.25 findet die 3. internat. hybride MECFS Konferenz von Charité und @MECFSResearch statt u.a. mit @PutrinoLab @kahryn_hoffmann @kjtronstad @steinacker_jm @chris_puta @neurostingl @DrDenDunnen Øystein Fluge David Systrom Yehuda Shoenfeld mecfs-research.org/news-events/me…
We are looking forward to attending the International ME/CFS Conference with such a great line-up of competent clinicians and researchers! Thanks to @C_Scheibenbogen and @MECFSResearch for organizing this important conference! #MECFS #PostCovid #LongCovid #MECFSConference
International #MECFSConference 2025 in Berlin. 📅 The 3rd meeting of the Fatigue Centre will take place on 12-13 May - and we are supporting it! ‘Understand, Diagnose, Treat’ is all about research & therapy for #MECFS & #PostCOVID. ➡️Details: mecfs-research.org/en/conference2…
EMEA issued this statement at 74th Regional Committee Meeting for Europe on the agenda item discussing the State of Health in the WHO European Region europeanmealliance.org/emea-news-whoe…
Therapiestudien zur Entfernung von Autoantikörpern sind dringend notwendig, die ersten Ergebnisse unserer Immunadsorptionsstudie bei MECFS zeigen dass es danach vielen besser geht. Wir bereiten Studien mit Medikamenten zur B-Zell-Depletion vor, aber es dauert leider alles so lang
Neben den IgG-Transfer Studien für mich die bislang wichtigste Arbeit zu Autoantikörpern nach COVID, die bei mehr als der Hälfte und gegen ein breites Spektrum von Autoantigenen, häufig Nerven und Muskeln nachweisbar sind und mit PC Symptomen korrelieren. pubmed.ncbi.nlm.nih.gov/39414823/
Last month 200+ healthcare workers wrote to Wes calling for urgent action to make NHS care safe for people with ME. He hasn’t yet responded. A recent coroner’s report said that more lives are at risk without change. Can he give us an answer live on air? thetimes.com/uk/healthcare/…
Maeve Boothby O’Neill died because of a discredited view of ME. How was this allowed to happen? | George Monbiot theguardian.com/commentisfree/…
Tweeting for 💙#KarenGordon #SevereME being mistreated by her NHS Trust. Bed-bound & cannot eat or drink. #DontLetMEDie #GreatestMEdicalScandal #pwLC #pwME The Times will publish her story on Monday 14th Oct 💙 Sign ✍️ & learn more here - change.org/p/save-karen-g…
Recent Muscle experiment using sera from ME and Long Covid patients transferred to in vitro muscles resulted in seen mitochondria dysfunction hypothesised leading to severe muscle problems. sciencedirect.com/science/articl… Just a Screenshot
Recent Muscle experiment using sera from ME and Long Covid patients transferred to in vitro muscles resulted in seen mitochondria dysfunction hypothesised leading to severe muscle problems. sciencedirect.com/science/articl… Just a Screenshot
Maeve died in 2021 after suffering from ME for a decade, a coroner looking into her death has called on the NHS to drastically improve the care for ME patients. Her mother Sarah Boothby tells @skysarahjane, Maeve was "a dream daughter." trib.al/Rx0iR33 📺 Sky 501
Full Segment (4 mins 30) BBC Radio 4 The Today programme. @TimesONeill talks about the prevention of future deaths report following the death of his daughter Maeve Boothby O'Neill who died from Severe #ME youtu.be/T4m1bLMgsI8?si…
TW: Full segment - BBC Breakfast on the landmark prevention of future deaths report following the death of Maeve Boothby O'Neill from Severe #ME. Includes interview with Maeve's mum Sarah Boothby (@swastrosarah) youtu.be/dH_CESZmmQA?si…
ICYMI: 🚨A Network Medicine Approach to Investigating ME/CFS Pathogenesis in Severely Ill Patients: A Pilot Study 🚨 Read now 👉 ow.ly/SieS50TEoYX. #pwME #OMFResearch #MECFSresearch #MECFS
United States Trends
- 1. Astro Bot 34 B posts
- 2. GOTY 70,7 B posts
- 3. #TheGameAwards 458 B posts
- 4. $LINGO 70,2 B posts
- 5. Ciri 69,1 B posts
- 6. Naughty Dog 56,9 B posts
- 7. 49ers 59 B posts
- 8. Deebo 36 B posts
- 9. Okami 109 B posts
- 10. Purdy 22 B posts
- 11. Rams 43 B posts
- 12. Niners 10,8 B posts
- 13. Elden Ring 191 B posts
- 14. Witcher 92,1 B posts
- 15. Arcane 276 B posts
- 16. Happy Friday the 13th 2.546 posts
- 17. Fallout 44,2 B posts
- 18. Clive 35,1 B posts
- 19. Cooper Kupp 6.546 posts
- 20. Wukong 33 B posts
Who to follow
-
Kags ❇ 😷 #LongVZV #pwME 🏴
@Klang764 -
Katie Johnstone
@SockFoam -
Kerry Newnham
@Squashedhedgi -
Corey Byrd (Severe M.E - Bedbound)
@Th3birdman333 -
MEnaced
@MEnaced_2016 -
Aliinthewoods
@aliinthewoods -
The Naked Weaver
@TheNakedWeaver -
This is M.E. tweeting
@ThisisMEtweety -
Link in the chain
@gv_gnett -
Betty teapot
@bettyteapot00 -
Walk for M.E
@Walk_4_ME -
Katie
@KatieAc23 -
Terry Field
@AlongsideME -
E ❀
@farbeyondtired -
Hilary Best 💙
@hilarypbest
Something went wrong.
Something went wrong.