Alayna T
@AlaynaTressMPH with a curiosity for people and families living with Duchenne and DM1. Patient Advocate at PepGen. Tweets are my own.
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📊🔬Don't miss our "Meet the #MyotonicDystrophy Drug Developer" session with PepGen! 📽️👇 Watch the recording & discover the latest advancements on their PGN-EDODM1 program at myotonic.org/digital-academ…
We celebrated #WorldDuchenneAwarenessDay on September 7 with the DMD community and @JettFoundation #WDAD2024
#DMD community members joined us to begin the celebration of #WorldDuchenneAwarenessDay with an educational panel. Here’s a sneak peek of the day.
@MyotonicStrong named July #MyotonicDystrophy #inMotion Awareness Month! PepGen hosted a lunch & learn highlighting recent data on the benefits of exercise for DM1 and a yoga class for staff. For more info visit: bit.ly/4fFHZST
@PepGenTx has shared positive data from the 1st dose cohort (5 mg/kg) of PGN-EDO51, the company’s lead investigational candidate for patients with #Duchenne whose mutations are amenable to exon 51-skipping. Learn more: parentprojectmd.org/pepgen-announc…
🗓️ Join us on Aug 2nd for a Meet the #myotonicDystrophy Drug Developers webinar and Q&A with @PepGen! 💊 Discover their latest DM program advancements. 🚀 Don't miss out - sign up now! 👇 us06web.zoom.us/webinar/regist…
PepGen invites you to “Meet the #MyotonicDystrophy Drug Developers” webinar hosted by @mytonicstrong on Tuesday, August 2nd. The webinar will be about PGN-EDODM1 and our clinical program. To register visit bit.ly/4bY4peQ
At the IDMC-14 Myotonic Dystrophy Meeting, Stichting MD created a video titled 'What’s Happening Now,' with the DM1 community on what matters most. Listen to insights from participants in the video below. #MyotonicDystrophy #Awareness #Advocacy youtube.com/watch?v=CnACwP…
Today our PepGen Pioneers participated in the #WalktoDefeatDuchenne hosted by @DefeatDuchenne Check out our walk in the video below:
Are you or a family member living with Duchenne muscular dystrophy? Our clinical research study is now enrolling. To learn more visit bit.ly/4efxHrV
School may be out for summer, but #ProfessorPepGen is back with Lesson 2, “the Phases of Rare Disease clinical trials”. Check it out here! #patientadvocacy #clinicaltrials #biotech #patienteducation
We are on track to report preliminary data from the 5 mg/kg cohort of CONNECT1 in DMD mid-year. This will be followed with preliminary data from the higher 10 mg/kg dose cohort, further advancing our goal of transforming the treatment landscape for DMD. connect1study.com
PepGen thanks @CureDuchenne for the opportunity to join the #DMD community at the #FUTURES conference. We always feel privileged to engage with advocates, families, researchers, and clinicians in meaningful discussions on how we can support the DMD community.
Thank you to everyone who shared their memories with us over the last few days! Enjoy this little collection of clips sent our way by members of the Canadian #Duchenne #musculardystrophy community. You can recap the day here: bit.ly/456nyt9.
Thank you, @PepGenTx, for walking in the 2024 Walk to Defeat Duchenne! Support their walk efforts: defeatduchenne.akaraisin.com/ui/wtdd2024/t/… #Duchenne #musculardystrophy
Today our PepGen Pioneers participated in the #WalktoDefeatDuchenne hosted by @DefeatDuchenne Check out our walk in the video below:
PepGen is appreciative of @DefeatDuchenne and all those who tuned in for our webinar last week. If you missed it, check it out: bit.ly/3UbL2sX #Duchenne #musculardystrophy
Looking forward to our webinar tomorrow with @DefeatDuchenne!
Industry Partner Update: Dr. Hugh McMillan will update our Canadian community on PGN-EDO51, the company’s lead product candidate for the treatment of people living with #Duchenne #musculardystrophy whose mutations are amenable to exon 51 skipping: bit.ly/4czxRJN.
PepGen is looking forward to a productive week ahead attending IDMC-14 and the associated @Euro_DyMA meeting with a poster and presentation. For more info on IDMC-14, visit bit.ly/3vtVOBm
PepGen is excited to announce that @DefeatDuchenne Canada will be hosting an industry update with members of our team and Dr. McMillan on our DMD program and the CONNECT1-EDO51 study next Wednesday, April 10th at 10am EST. Register and learn more: bit.ly/3PN7aaO
#ICYMI PepGen attended the #Myotonic Dystrophy Foundation 2024 Regional Conference in Gainesville FL last month, engaging with the Myotonic Dystrophy Community and answering questions about our programs. We look forward to learning more in Boston this weekend! @MyotonicStrong
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