@AislingReverdie Profile picture

frequently horizontalist

@AislingReverdie

Solidarity with sick people but for real (she/her)

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Pinned

Speaking of which, does anyone have any recommendations of D/deaf advocates or orgs that might have experience fighting medical bureaucracy stuff? Specifically with getting insurance companies and other providers to provide some kind of accessible alternative to phone calls?

Oh yes, and the only way to figure this out and fix it was to speak to them over the phone, so good luck if you are deaf or have auditory processing impairments!



*logs on, sees DSA covid discourse, immediately logs back off*


frequently horizontalist Reposted

Good morning! The @polybioRF 2024 Fall Symposium is kicking off shortly, and we will be live tweeting the entire event! Follow along on this 🧵 1/

It’s time! Our Fall Symposium is tomorrow, November 8th, at 11 AM EST. If you haven’t had the chance yet, sign up now to secure your spot. We’re looking forward to sharing our project updates! polybio.org/fall-2024-symp…



I don't have any useful connections here. Can anyone else help?

#DisabilityTwitter Can you please put me in touch with patients with Chronic Regional Pain syndrome & SFN? Especially those on IVIG. Thank you. Feeling lost on my medical journey. Trying not to give up. #chronicregionalpainsyndrome #singlefiberneuropathy #ivig #scig #pwme



Australia 👇👇👇

Do you have Long COVID? Want to help researchers find effective treatments? We are seeking people with Long COVID to join our Lived Experience Advisory Group (LEAG) to devleop an Australian platform trial to test the efficacy of promising existing treatments for Long COVID.



frequently horizontalist Reposted

What Your Boss Won't Tell You About Covid Sunday, Oct 27th, at 1:30-3pm central 2705 St. Claude & online A conversation on covid & labor: why prevention still matters, how we can protect ourselves with union power, and connecting struggle for public health across movements ✊😷

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frequently horizontalist Reposted

🚨🚨🚨🚨🚨🚨🚨🚨🚨🚨 Latest update as of 10:47pm we still need $200 before they open in the morning. Please help us. If 20 ppl could give $10 or if 10 ppl could give $20. Anything will help. If you donate please drop a 💡in the comment and if you can please share comment boost…


frequently horizontalist Reposted

Y'all don't hate the South because you're anti-racist. Y'all hate the South because you're racist.


frequently horizontalist Reposted

Anyway, reminder that anti-Southern oppression *is* oppression rooted in anti-Blackness, classism & capitalist values, xenophobia, anti-Indigeneity, and more! It's also used to deflect the harms of climate change. Posted 1 day after Milton, during early days of Helene relief.

Do you have Long COVID? Want to help researchers find effective treatments? We are seeking people with Long COVID to join our Lived Experience Advisory Group (LEAG) to devleop an Australian platform trial to test the efficacy of promising existing treatments for Long COVID.



Um I want all of them

YALL I just realized I can finally afford to open my etsy store now that I don't have to worry about saving money for food and stuff omg omg omg!!! I have enough disposable cash to afford the first batch of sales 🥹. Right now I’m working on a series of shirts called that people…

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frequently horizontalist Reposted

this sign rules actually

I think I am done:

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frequently horizontalist Reposted

People unaffected with means should be donating to evacuation funds.

I think I am done:

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Very eager to read this eventual story (also this is my reminder to try to get myself into that clinic)

For an upcoming story at @thesicktimes, I’m looking to talk to people with #LongCOVID and other complex chronic diseases who've gone to the new Cohen Center for Recovery from Complex Chronic Illness, led by Dr. Putrino at Mount Sinai. DM or email me at betsy@thesicktimes.org



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